Monday Motivation: Parade at IU8
MONDAY MOTIVATION: Last Friday, May 11th, 18 kids with disabilities received an adaptive bike, adaptive stroller, and/or communication device through Variety’s programs at Appalachia Intermediate Unit 8! Here’s a glimpse at our PARADE!
MILES OF SMILES Thanks to Governor Wolf & USW’s Leo Gerard!
Saturday, April 21st was a day full of joy, freedom, and fun, as Variety presented 13 adaptive bikes through its “My Bike” Program to local kids with disabilities alongside Pennsylvania Governor Tom Wolf, United Steelworkers’ International President Leo Gerard, and nearly a hundred attendees at the Carpenters Training Center!
Governor Wolf and Leo Gerard even led our kids in the bike parade around the facility and outside (click here to watch it for yourself)!
You can also view all the smiles from the presentation by clicking here!
During the program, Governor Wolf gave voice to what the day and Variety’s “My Bike” Program meant by saying,
“I want to point out first that this is a really big day for Pennsylvania, and I think this showcases the best of who we are. This is giving freedom. This is letting kids, be kids, and that’s what we ought to be about, and that’s what this is all about.
The partnership between organized labor and families in need – this is humanity at its best. This is who we are as human beings. This is who we are as Pennsylvanians, and I think we ought to celebrate this every single chance we get.
I am proud to be a part of this, and thank you for leading the way here in Western Pennsylvania.”
Katie, age 6 was 1 of the 13 kids to receive a new adaptive bike, and Katie’s bike was generously sponsored by Highmark (the Founding Sponsor of Variety’s “My Bike” Program), which was represented by Dan Onorato at the event.
Katie also received her new communication device on Saturday thanks to USW’s efforts!
Katie’s grandpa, Tom is the Training Coordinator for the Carpenters Training Center (where the event was held), so it was an extra special day for their family. Katie’s mom, Christy described what the communication device would mean by saying,
“Katie has a very difficult time expressing herself with words. She becomes very frustrated when she cannot communicate her needs. This frustration can lead to meltdowns. She uses a device in therapy and it has proven to be very successful in helping her express her needs. My husband and I, along with her outpatient speech therapist believe this device will help her be more successful in school and in her everyday life.”
Variety was grateful to have partners like Allegheny County Executive Rich Fitzgerald and PA Congressman Conor Lamb join us for the special day, in addition to so many others!
Our sincerest thanks to everyone that helps to make these smiles possible from their time, support, and passion – you are a hero to our kids!
Janessa Shared Her “New Voice” Before 15 Kids Received Equipment!
On Friday, March 23rd, Variety presented life-changing equipment at the Capital Area Intermediate Unit (CAIU) to 15 local kids with disabilities with each piece individually tailored to meet their needs.
Prior to our presentation, Janessa, age 11 kicked things off by demonstrating how she uses her communication device – her new voice – that she received from Variety last November.
Since receiving her device, Janessa has been featured in two television spots through Highmark’s Living Proof campaign, one in which she uses her device to talk with her doctor for the first time, and then another to order food at a restaurant for the first time.
One of the most meaningful moments of the event was hearing Janessa’s mom, Julie update us on the progress and impact that has taken place for Janessa, and ultimately, her entire family since receiving her device (her new voice) – click below.
To give you even more to smile about, thanks to Janessa, three of her classmates received communication devices as well, including Ryan, age 9, who was more than a little excited.
His mother, Monique gave voice to how life-changing this device would be by saying,
“Ryan’s greatest ability is his love of reaching out to people and attempting to communicate his wants and needs. He often launches into very long and animated stories complete with hand gestures and big laughs. Unfortunately, his educators, classmates, and many loved ones cannot understand him because they are his own made up words and not real words.
Ryan’s life would improve exponentially with a communication device. As a parent, its heartbreaking to see this deficit. We truly believe a communication device along with hard work on our part, Ryan’s enthusiasm and this device could change his entire social, educational, and emotional lifestyle.”
The March 23rd presentation also featured a terrific “equipment parade” with cheers of celebration that I’m sure you’ll enjoy – click here to watch for yourself.
A Day to Remember in West Virginia
To our knowledge, history was made yesterday in Morgantown, West Virginia for kids with disabilities.
In one afternoon, Variety hosted the largest presentation of adaptive equipment for children with disabilities with 45 kids receiving equipment (worth more than $70,000) – including 26 adaptive bikes, 8 adaptive strollers, and 11 communication devices.
As we have all come to experience, the kids were truly the stars of the show, like Deklan, age 7, who couldn’t have been more excited as he continually gave “thumbs up” in response to getting his brand new blue adaptive bike!
His mother, Tiffany said with tears,
“Deklan was born at 24 weeks weighing 1lb, 3 oz. and spent close to six months in the NICU. He’s had 5 eye surgeries, a heart surgery, blood transfusions, and he was on oxygen for the first year of his life… he’s been through a lot with many of his surgeries being lifesaving. However, today is a milestone day for Deklan, as he will have his own bike and experience the freedom of riding it, and gain the confidence and the security that he needs to do so on his own.”
Another highlight yesterday was two teenagers, Hannah and Macey, who are best friends.
They did not know until they arrived at the presentation and saw each other that they were both receiving an adaptive bike of their own.
Hannah received a blue bike and Macey a pink one, and they spent the afternoon jumping up and down with joy, hugging each other, screaming with excitement, and telling their parents about all the bike riding they were going to do together. They even got to enjoy the bike parade together.
I wish everyone could have been there to see this phenomenal moment of joy that these two best friends shared – we are so fortunate to be a part of it these beautiful moments.
Check out these three news pieces that came from this beautiful day.
- WBOY-12: http://www.wboy.com/news/local/monongalia-and-preston/organization-provides-children-with-adaptive-equipment/1034239723
- WDTV-5: http://www.wdtv.com/content/news/WV-children-with-disabilities-get-life-changing-equipment-476594683.html
- The Dominion Post: http://www.dominionpost.com/Charity-presents-bikes-to-childr
Pittsburgh Penguins & Jacob, A Variety Ambassador
Talk about a night of impact for kids with disabilities at the Pittsburgh Penguins’ “Hockey is for Everyone” event on Monday, March 5th!
The true highlight of the event was Jacob Buchheit, a Variety Ambassador who has truly helped to elevate the work of Variety in extraordinary ways. His time and involvement to our organization has acted as a ripple to us impacting the lives of so many more children.
At the event on March 5th, Jacob was at the center of it all, as Variety was presented with a check for $18,000 by the Pittsburgh Penguins’ Foundation to sponsor 10 more adaptive bikes, as part of Leo Gerard’s campaign last year to raise $500,000 to sponsor more adaptive equipment for kids.
Variety and Jacob were joined by Pittsburgh Penguins’ CEO, David Morehouse and other Penguins’ executives, who shared in Jacob’s joy, as he showed them (with such pride) videos of him with the Mighty Pens sled hockey team on his communication device.
You probably remember that Jacob was featured in Highmark’s Living Proof spot on his adaptive bike, and then he was featured in a Highmark advertisement in the Ice Time program booklet throughout last year’s Penguins season.
Well, Jacob brought a handful of these booklets, and he handed them out (with his autograph) to the entire group!
Additionally, Jacob was featured throughout the game riding his adaptive bike on the jumbo-tron (a video produced by the Penguins), in the Highmark Living Proof spot, and then on the ice riding his sled hockey between periods with a handful of other kids – talk about a celebrity!
Here’s a clip of what was shared at the game – don’t miss Jacob’s reaction at the end in seeing himself on the big screen!
Jacob’s journey has been nothing short of a miracle, and I’m sure you will smile as you read more about him and the impact that Variety has had on his life in this piece that was written by the Penguins and featured on their site.
Prior to Monday’s hockey game, Jacob received the 2018 Bob O’Connor Spirit of Pittsburgh Award from the Bob O’Connor Foundation on Saturday, March 3rd!
The entire community is part of this incredible team that we have built at Variety, and the impact that we have had on so many kids like Jacob and their families. This is only the beginning for the impact that we will create for kids, and we are excited about what we will do together in the years to come!
Range Resources Gives Back!
This past December, Range Resources Corporation & its incredible team hosted a special holiday-themed presentation for local kids to receive their very own individually customized adaptive bikes. Range even produced this incredible video recapping the day!
“United Together for Kids”
On Friday, November 3rd, Variety celebrated its 90th Annual Gala at Heinz Field, and it was a night to remember!
Highlighting Variety kids & partnerships, the evening showcased an adaptive bike parade featuring children with disabilities, former Governors Tom Corbett and Ed Rendell, PA Department of Labor & Industry Secretary Jerry Oleksiak, United Steelworkers International President Leo Gerard, and Jones Day Partner Roy Powell.
Our organization was honored to present Leo Gerard with our 2017 Catherine Variety Sheridan Humanitarian Award and Roy Powell with the 2017 Variety Advocacy Award. A very special thanks to our 2017 Presenting Sponsors: Highmark, Jones Day, Peoples, & PNC.
To make the evening even more special, honoree Leo Gerard announced that he and USW International raised approximately $500,000 to provide more adaptive equipment to eligible children with disabilities through Variety’s programs!
WPXI-TV put together a terrific story highlighting USW International’s commitment and support that you can view by clicking here.
Memorial Bike Ride on Sept. 30th!
Come join us for the Fourth Annual J. Terrence Farrell Memorial Bike Ride, which will beneift Variety’s “My Bike” Program.
When: Saturday, September 30, 2017
What Time: 8:30am – 12 Noon
Where: The ride starts under the Boston Bridge, with a 7.5 mile stop at the Dravo Cemetery in Buena Vista. Experienced riders may continue on Smithton Beach. All bikers will return at 12 Noon to the Kenneth Frew Pavilion for Lunch and a ceremony in honor of J. Terrence (Terry) Farrell.
Registration Fee: $25
You can register for the bike ride by clicking here.
As a long-time member of the McKeesport Lions and local attorney, each year Mr. Farrell’s “Bike for Sight” raised thousands of dollars for local charities. The funds from last year’s event were distributed locally to the McKeesport Regional History and Heritage Center, the Carnegie Library of McKeesport, the Mon Yough Trail, the Mon River Fleet Lions Club, Friends of the Riverfront, Variety the Children’s Charity, and American Heart Association.
For questions regarding this year’s event, please contact Belinda O’Keson at (412) 678-7126 or via e-mail at firstname.lastname@example.org.
For updates on this annual event, please check out their Facebook Page.