Cheers for Emmett, Cheyenne, Antony, & Charlee!

Unlike most musicians, VARIETY NEVER STOPS TOURING!

We are continually touring throughout our service area of 64 counties all year long to present adaptive bikes, adaptive strollers, and communication devices to kids with disabilities. We aren’t just providing equipment, we are providing life-changing opportunities for our kids to discover where their lives can go, and we’re grateful that you continue to share in the joy with us.  

MEET EMMETT & HIS NEW VOICE:

Emmett is all smiles with his new voice!

Emmett, age 6 received his new communication device during a presentation with the Seneca Highlands Intermediate Unit 9 team on Tuesday, August 13th!

His mom, Melissa explained why this device is SO important,

“Emmett is completely non-verbal , and it is extremely difficult to understand some of his ‘signs’. He has trialed a device in school and has done great with it. We would like to expand with that and be able to work with him at home and with the schools, in hopes that we’ll be able to establish a more effective way of communicating with him. Right now, Emmett uses some modified signs that sometimes only me or the school understands.  It becomes frustrating for him, and all parties involved when we don’t understand what he needs. I have found myself late at night videotaping Emmett crying, requesting the same sign over and over as I’m not understanding what he’s trying to ask me and texting it to someone from his classroom for help.  I really believe this device could make a huge change.”

During the presentation, Melissa went further to tell us Emmett had not been feeling good for weeks and no one could figure out what was wrong with him. Just a few days ago, the doctors were able to pin point his symptoms to believe that Emmett has had lime disease… without a voice, Emmett and his parents have had to live with frustration, but no longer will that be the case.

MEET CHEYENNE & ANTONY WITH THEIR NEW BIKES:

Antony and Cheyenne are pictured above all smiles on their new bikes!

On Monday, August 12th, Variety partnered with PlayWorks and the West Virginia Black Bears to present Cheyenne and Antony (pictured above with some of the players) with their 2nd adaptive bikes (after outgrown their 1st bikes that they received when we kicked off in WV in 2014)!

Cheyenne’s mom, Tracy told us, “The bike allows Cheyenne to be out in the neighborhood and community with friends. It gives her a sense of being a part of the group of kids instead of being left out. Inclusion is so important”

Antony’s mom, Sandra told us, “Having an adaptive bike gives him another avenue to be active and exercise and feel like he can do the things that he sees other kids his again doing.  It is a way for him to feel more like a normal child and feel like he can interact with other children instead of having to just watch them.”

MEET ROSE & HER NEW SLICE OF FREEDOM:

 

Rose is pictured on the left surrounded by her family, The Honorable Tom Corbett, and IU17’s Dr. Christina Steinbacher-Reed, and on the right enjoying her very first ride on her new bike!

Lastly, on August 5th, Variety kicked off its programs with the BLaST IU 17 team, where we were joined by The Honorable Tom Corbett. Rose was one of 10 kids that received their new adaptive bikes, and her family couldn’t have been more thrilled!

Her mom, Joanna told us, “It would also give her a chance to enjoy the outdoors not confined to a stationary chair. I truly believe that receiving an adaptive bike would increase Rose’s quality of life!! She could enjoy voluntary movement, get outside more, and have fun! The motion that an adaptive bike would provide would increase her muscle movement, keep her flexible, and give her a chance to feel like a kid. Every kid should have a bike. The feeling of riding, the peace it brings. The thought of seeing her enjoy something as simple as bike riding makes my heart smile…”

THERE ARE MORE SMILES TO COME, so please stay with us as we keep touring along, as it’s all for the kids!

SPRING TOUR Provides 347 Pieces of Equipment Worth $526,000!!

SPRING TOUR BREAKS VARIETY RECORDS TO HELP MORE KIDS!

We’re thrilled to share that Variety’s Life-Changing SPRING TOUR presented a total of 347 pieces of adaptive equipment to children with disabilities over 18 separate stops throughout our service area.

Specifically, we provided 147 adaptive bikes, 128 communication devices, and 72 adaptive strollers worth $526,000 between April 1st through June 18th — and we couldn’t have done it without our incredible partners, supporters, and friends!

Together… we gave MORE SMILES,

Three of the many kids that received new adaptive bikes!

MORE CHANCES FOR COMMUNITY,

Three of the many kids that received new adaptive strollers!

AND MORE OPPORTUNITIES FOR LIFE!

Three of the many kids that received new communication devices!

A historic amount of equipment was presented over the last two and a half months, and we couldn’t have done it without our community of committed helpers. Thank you for sharing in the joy of our work and helping us to make sure that more people know Variety exists, so more kids receive this life-changing equipment.

A Mother’s Day MADE SPECIAL w/ Stroller & Device!

Ezra and Caitlin out on Mother’s Day.

Just last month, 5-year old Ezra received an adaptive stroller and a communication device through Variety’s programs, and this week, we received a VERY SPECIAL update from his mom, Caitlin, who proclaimed on Facebook,

Best Mother’s Day ever. For the first time in years, Ezra was able to join our family our at a restaurant to eat with the help of his new adaptive stroller. He sat at the table so nicely and I was so proud! So many little victories I’ll never take for granted!”

Caitlin also told us that Ezra has made significant progress in the past month with his new communication device, “Out of the silence, the roaring lion! Ezra is starting to talk! Years and years of prayers and waiting and prayers and crying and prayers and hoping and prayers and pleading.

My. Ezra. Is. No. Longer. Silent. He’s trying with everything in him to repeat my words and sounds. This is just the beginning. Because of the communication device, you should see the joy on Ezra’s face when he knows he is being understood!”

Caitlin is pictured above with Ezra in his new stroller and holding his new device at our presentation last April.

To get a feel for Ezra, I thought you might enjoy this very quick video to appreciate how speedy Ezra is in using his device —- his voice (click here to watch). 

This update not only brings me sincere joy, but it fills me with a greater passion to do even more for kids like Ezra and moms like Caitlin because these MOMENTS MATTER.

I Hope You Can Read Kim’s Words…

Jace is 7 years old, nonverbal, and recently received a communication device AND adaptive stroller from Variety. The impact that these two pieces of equipment are going to have is incredible!

Jace is pictured above showing off his new device!

To give you a better idea, his mom Kim explained the challenges that are often hidden to us, but she and Jace live every day. I hope that you can read and take in Kim’s words, as they truly shine a light on what our families face, and how Variety is providing a bit of hope along the way.

  • Kim told us, “I cannot communicate with him. He cannot tell me even his most basic needs and wants. He cannot tell me if he is scared, if he’s in pain, if something is wrong.

  • I’m at a loss… whoever thought it would be this hard. It’s so frustrating as a parent. Everything gets put on hold. Because of his physical challenges, I don’t even know what he can and cannot do because he can’t tell me.

  • Receiving the communication device gives me hope. Hope that I’ll be able to understand what he understands. Hope that he can communicate what he’s struggling with so that I can help him. Hope that I will truly be able to understand him… I worry about what I do not know.”

Kim also went further to tell us how the adaptive stroller would make a significant impact,

“I cannot take him as well as his 3-year old typical brother out because if one of them gets away from me, I can’t leave the other to get him. It is not just exhausting, it is scary. Jace is also getting too heavy to lift. The stroller will enable us to go out and participate in the community. It is terrible to be isolated, especially in the winter.”

Jace is feeling comfy in his new stroller.

Our work is certainly not the solution to all of life’s problems, but I feel privileged that we can provide such life-changing equipment to these amazing kids and their families. It is giving them a bit of HOPE to keep going and strength to push through the challenges that they face each day.

Climbing A Mountain w/ the Stroller? IT HAPPENED!

This is absolutely incredible! Reagan’s family used their adaptive stroller to climb to the very top of Bryce Canyon in Utah to see the morning sunrise, and they got to do it TOGETHER as a family.

Reagan, age 9 (pictured above with her mom), received an adaptive stroller through Variety’s “My Stroller” Program a few years ago, and her mom Kelly told us how incredible the stroller has been for them,

“We applied and received an adaptive stroller first, which was a huge blessing. In fact, two summers ago, we went out West. My dad has Parkinson’s and it was on his bucket list, so we wanted to make that happen. With the stroller, we made it up Bryce Canyon, and my husband decided that ALL of us (since it was a once in a lifetime opportunity) need to reach the top of Bryce Canyon. We woke up at 4:30 in the morning to see the sunrise, and my husband put Reagan into her stroller, and he pushed her all the way up the mountain. So, I know you can reach the top of a mountain with this stroller.

More recently, Reagan received her new adaptive bike from Variety, and Kelly told us they have big plans for it, “We do a lot of camping, so that’s where the bike comes in. It will offer her adventure and even some freedom!”

Kelly goes into even more detail about the stroller’s impact in this video. Check it out and listen to Kelly’s amazing words first-hand.

ONE WEEK | 37 More Smiles

Over the course of one-week, Variety partnered with the Appalachia Intermediate Unit 8 and the Capital Area Intermediate Unit to impact 37 local kids throughout the Central PA region!

TAKE A MOMENT & SHARE IN THESE SMILES!

Tori is all thumbs up for her new bike.

Kids like Tori (pictured below) received their brand new adaptive bike in partnership with AIU#8 on Monday, January 7th. Upon seeing her bike for the first time, Tori exclaimed with joy, “THERE SHE IS! THERE SHE IS! Tori also gave her bike the name, “Gorgeous.”

Tori’s mom, Mary Ann told us prior to the presentation,

Over the years, we tried to get Torrance to ride a 2-wheeled bike, but she has a hard time with balancing and is scared of falling. Tori will watch her neighborhood peers ride their bikes and she just wants to ride with them. Getting an adaptive bike will help her enjoy her friends riding bikes together and not feel left out and different. During her first bike ride at the presentation, she was smiling from ear-to-ear and was riding her new bike with speed and no fear for the very first time.”

Additionally, Mia (pictured below) received her new communication device with AIU#8.

Mia checking out her new communication device!

Mia’s mom, Anita described what this device will mean, “Mia began trialing a communication device in the Spring of 2018, and it has been a catalyst for her understanding of what communication is and showing our family what she is capable of. One day, Mia showed us on her device how to spell her first name and last name without any prompting. We were shocked as we had no idea she knew that. We laughed, we cried, and celebrated. A device has given us hope and we would love for Mia to always have this opportunity to talk and showcase her cognitive ability. She has many obstacles, but having a device makes life at home and school a little easier.”

When Variety presented adaptive equipment this past Monday, January 14th with the CAIU, Emma received her new adaptive stroller (pictured below with her mom and sister).

Emma in her new comfy stroller.

Previously, Emma received an adaptive bike through Variety, and her mom, Jackie described the impact of this equipment, “Emma got a bike and we’ve incorporated it into her home-based instruction as an incentive, so it is all about the bike (she loves her bike). With the stroller, Emma can walk, but not very long distances, so it will be huge for our family because we don’t have to be isolated. I can take Emma and her sister out together versus only one of them at a time. The stroller will help us be able to do more things as a family and help Emma reach her best potential.”

AND HERE’S ONE LAST SMILE…

All smiles next to their new bikes!

Brothers, James and Willoughby both received their new bikes at the CAIU and couldn’t have been more excited about it!

A New Year | Same Amazing Impact

As we dive into the New Year, I hope that you’ll take a moment to reflect on the reason for Variety’s work with me.

For kids with disabilities, life can have a great deal of obstacles, unexpected setbacks, and financial stresses that not only impact the child, but their entire family. The needs and challenges of these children are often invisible to the community-at-large. Variety’s work strives to equip these amazing kids with equipment that is individually customized for them to meet their needs and give them greater opportunities for their life.

An adaptive bike is provided through Variety’s “My Bike” Program with every bike being tailored and manufactured for each child to give them the chance to ride a bike (many for the first time in their lives).

An adaptive stroller is provided through Variety’s “My Stroller” Program, and this customized piece of equipment is used for easier mobility throughout the community and to keep kids safe (who might be runners).

A communication device is provided through Variety’s “My Voice” Program and gives children living with a communication disorder (or are nonverbal) a restricted device loaded with a prescribed communication app that allows kids to have a voice at all times wherever they go.

In 2019, Variety’s priority is to identify every single eligible child that could benefit from our programs with kids being able to apply for one, two, or all three programs.

A very Happy New Year to you – may it be the best year yet.

JOY, JOY, & MORE JOY – something to smile about

Miles of SMILES!

This holiday season, Variety had the chance to present more than 80 pieces of adaptive equipment during 5 presentations to kids with disabilities, and it was pure JOY, JOY, JOY!

In partnership with the Central Intermediate Unit #10, Forbes Hospital, PlayWorks, Range Resources, and Saint Vincent Hospital, we presented 35 adaptive bikes, 15 adaptive strollers, and 32 communication devices (worth $123,900).

Here’s a few highlights to smile along with us!

Zane is pictured above “all smiles” with his family on his new bike and showing off his new device.

Zane received his new adaptive bike AND communication device during a presentation with PlayWorks in Morgantown, WV. His mom, Autumn described the bike’s impact simply by saying, “Zane loves being outdoors. He struggles with a regular bike, so he usually chases his sister rather than getting to ride with her.” Now, Zane will get to just be a kid and ride bikes alongside his sister.

Brylee immediately began checking out her new device (her new voice).

For Brylee and her parents, a communication device will have a significant impact to daily life. Her mom, Candace told us,

Though our daughter can be verbal, she really isn’t. When you ask Brylee ‘how was your day,’ or ‘what did you do in school today,’ or ‘what do you want for dinner,’ her response is usually silence. On occasion she will give you just a repetitive response she has heard a million times and what she thinks to be the appropriate response, but it’s mostly a one-sided conversation…which has been one of the most heartbreaking things.

Another big hurdle for us is not knowing what could be wrong with our daughter when she is sick, or when something is hurting her. When you have a child that just starts crying her eyes out for no reason, but cannot communicate to you that her belly hurts, or that she stepped on something and now her foot hurts because she has no way to communicate to you is very freighting.

Being able to know what is wrong with her when she is sick and being able to have more conversations with her that are no longer one sided is huge!

Noah is pictured above feeling comfy in his new stroller.

After Noah got his new adaptive stroller at Range Resources, he and his mom were planning to take a stroll around the Mall at Robinson – something they struggled to do previously. His mom, Christine told us, “We can’t wait for Noah to get his stroller.  It will make going to and from school so much easier.  We will be able to go to the mall, out for walks, and to the amusement park without worrying about Noah running away.  We will not have to strain so much carrying him as well.”

During our five recent presentations, we were grateful to have local media coverage, which will hopefully enable more kids to be identified and receive this life-changing equipment. Click on the links below to share in Variety’s “Tour de Joy”.

  • Presentation with Range Resources (Allegheny County):
    • Pittsburgh Post-Gazette
    • WTAE-TV

Happy Holidays to you and your family!

Impact for 12 Kids in Clearfield County!

Yesterday, we had a terrific presentation of 5 adaptive bikes, 5 adaptive strollers, and 2 communication devices in Clearfield County in partnership with the Central Intermediate Unit #10. It was thrilling to give out so much equipment in a rural area!

My thanks to Board Member Mickey Sgro for making the time to join us and help make the day go smoothly! I was especially excited because we got to present the equipment during an all IU Special Education Director meeting, which will hopefully help to increase identification of kids in the area.

In particular, David, age 9 received an adaptive bike alongside his good friend, Zahir, age 9 who received an adaptive stroller.

David is all smiles on his new bike!

When asked by the media if he was excited about his bike, David responded with smile, “I have never rode a bike before. I feel happy. Very happy to get a bike!

Additionally, I took a pause after hearing what Zahir’s mom, Catherine said regarding the impact of his stroller. Zahir has a wheelchair that is hard to break down and is also very heavy. It has always prevented him from getting to go into a McDonald’s, where his favorite food is French fries.

Zahir is all smiles in his comfy new stroller next to his friend (and classmate), David!

When he heard he was getting his new adaptive stroller, he immediately asked his mom (with excitement) if they could go to McDonald’s after the presentation and go INSIDE for the first time. Of course, his mom promised with a smile. She went further to say, “He doesn’t get the opportunity like other kids to do the simple things in life.” This stroller is helping to make one more opportunity possible.

We were also joined by WJAC-TV and The Progress Newspaper, who helped us to capture the day (see links below). I think you’ll especially enjoy reading about Lydia, age 13 and the impact her new bike is going to bring (Progress News article).

Twins, Levi & Emmalee Impacted In Wheeling!

Yesterday, we celebrated the holiday season early in Wheeling, West Virginia!

Jordyn is pictured above ALL SMILES on her new bike (photo by WTRF).

Variety partnered with Southwestern Energy on Thursday, November 8th to host a special presentation for local kids in the Wheeling region to receive new adaptive equipment, and we were even joined by Wheeling Mayor Glenn Elliott!

In total, Variety presented 4 adaptive bikes, 2 adaptive strollers, and 1 communication device, as well as fit 4 more kids for a bike or stroller (i.e. the last step before ordering equipment). Excitingly, two of the kids yesterday received multiple pieces of equipment, as Variety does not put a limit on families receiving more than one piece of equipment. If a child is eligible and can benefit, we want families to have it.

It was a VERY special moment for parents Kathy and Vernon, as they watched their 8-year old boy, Levi receive his very own adaptive bike. It got even more special as Variety fit Levi’s twin sister, Emmalee for HER adaptive bike!

Pictured above are Emmalee on a blue bike and Levi on his red bike with myself, Amy Dobkin (Southwestern Energy & Variety Board), Kathy and Vernon, and Mayor Elliott.

Here’s what Kathy shared with us during the presentation,

“I have twins. This is Emmalee and this is Levi. They are both autistic, and even though Emmalee speaks, she can’t answer yes or no questions to let us know if she was hurt.

Before coming here today, I heard about Variety’s other programs, including their “My Voice” Program, and that’s big for us because we have never heard Levi talk, as he is nonverbal. Recently, Levi has started to verbalize sounds, which is huge for us.

And now for the first time, he’s going to be able to ride a bike after. It is going to give my child more freedom, which is huge!”

Check out these two terrific pieces done by WTOV and WTRF to experience the joy of yesterday for yourself!