Nonstop Impact in August & September!
Things look a lot different this October than they did last year.
However, one thing that hasn’t changed is the impact that Variety is creating for kids with disabilities by providing them with customized adaptive bikes, adaptive strollers, and communication devices!
I hope you can take a few minutes to read some recent stories of how we are changing the lives of our kids and their families through THE GIFT OF MOBILITY!
“The best day of my life.” – Arabella’s dad
After 5-year old Arabella received her new adaptive bike (pictured above), her dad Doug was overcome with gratitude, as he said, “This is awesome, this is the best day of my life right now, absolutely. THE BEST DAY OF MY LIFE. This is going to raise Arabella’s spirits so high. This little girl is going to feel like she is part of everybody else. When we wanted to go for bike rides, she would have to ride in the buggy. Now she can ride her bike.”
Check out Arabella riding in this piece by WNEP-TV: https://www.wnep.com/article/news/local/lycoming-county/kids-in-lycoming-county-receive-adaptive-bikes/523-81ab322d-fb6a-44ee-8b26-27c008f0f1fe
“Can we ride all day?” – Blayne
12-year old Blayne had an extra-special day as he started high school, and then after going to school, he got to ride his new bike for the very first time. He said to his mom as he rode around the parking lot, ”Can we ride all day?”
His mom Ashley described how much this bike would mean by saying, “This will be life-changing. He wants to be independent and he will be able to ride with his friends and brothers (Blayne is a twin) and, as a family, we love the outdoors and we love riding bikes.”
Read more about Blayne in this Northcentral PA news article – https://www.northcentralpa.com/news/local/local-childrens-groups-hold-equipment-giveaway-for-kids-with-disabilities/article_49b649ac-eb91-11ea-86a7-17d4540ba367.html
New Found Freedom for Natalie & Samantha
Pictured above are Samantha on the yellow bike and Natalie on the pink bike. Two of Samantha’s siblings received bikes last month, and now they will all be able to ride together.
Natalie’s mother, Ranah, reminded us of how important inclusion and accomplishment are, when she said, “We want Natalie to be able to do what any other kid can do, and now she can do it.”
We’ll name it, “Big Blue!”
When 15-year old Justan received his new adaptive stroller (pictured above), his mom Megan shared, “He can only walk about 20 feet with his walker. He is a very social boy who loves to be out. The stroller will allow us to safely and easily transport him. It is lightweight enough for us to handle, yet strong enough to support his thighs and weight. He feels safe in it and has named it ‘BIG BLUE’. . . I could just cry I am so happy for him.”
THANK YOU for sharing in the joy of our families!
It was our biggest year EVER, in which Variety provided 662 adaptive bikes, adaptive strollers, and/or communication devices to children with disabilities!!
For our small team, it was no easy accomplishment, but the transformative impact created for 662 kids and their families was priceless for us all!
Many of you know this quote by Fred Rogers, who said, “When I was a boy and I would see scary things in the news, my mother would say to me, Look for the helpers. You will always find people who are helping.”
You are the HELPERS, you are the GIVERS, and you are the LIFE-CHANGERS that make Variety’s work a reality, and we want to thank you through the smiles of our extraordinary kids!
Ozie’s ready for his 2nd My Bike® after he outgrew his first one!
Ozie’s mom, Ashley explained what an adaptive bike has meant,
“Having an adaptive bike is so important to my son Ozie. He is 11 now and he understands that he is different from all other children and can’t ride a normal bike. It was hard for him to understand but he realized that a normal bike doesn’t have the support for him, and he is unable to keep his feet on the petals and he has no balance. By him having his own adaptive bike, allows him to get out of the house and partake in outdoor activities with all the kids in our neighborhood and our family. Everyone deserves to have their own bike and the joys of being a kid. This program allows that.”
Emma’s My Stroller® has her smiling!
Emma is pictured above “all smiles” in her new adaptive stroller that was provided through our My Stroller® Program, and with it, Emma now has a light-weight, collapsible, and comfortable way to get around. There’s not much more to add to the beautiful smile on Emma’s face!
Mason’s My Voice® Has His Brother EXCITED!
Mason’s mom, Nicole explained why the communication device is so important,
“Mason has a delay in his speech. While he is doing amazing and trying to talk more and more every day, he continues to get frustrated when he is trying to tell or ask for things and others don’t understand him. Having a device that Mason will be able to communicate from will help him express his needs and will also improve his speech.”
As 2020 is nearly upon us, we hope you’ll continue to share in the smiles of our extraordinary kids and their families, as we strive to create even more impact for even more kids!
Unlike most musicians, VARIETY NEVER STOPS TOURING!
We are continually touring throughout our service area of 64 counties all year long to present adaptive bikes, adaptive strollers, and communication devices to kids with disabilities. We aren’t just providing equipment, we are providing life-changing opportunities for our kids to discover where their lives can go, and we’re grateful that you continue to share in the joy with us.
MEET EMMETT & HIS NEW VOICE:
Emmett, age 6 received his new communication device during a presentation with the Seneca Highlands Intermediate Unit 9 team on Tuesday, August 13th!
His mom, Melissa explained why this device is SO important,
“Emmett is completely non-verbal , and it is extremely difficult to understand some of his ‘signs’. He has trialed a device in school and has done great with it. We would like to expand with that and be able to work with him at home and with the schools, in hopes that we’ll be able to establish a more effective way of communicating with him. Right now, Emmett uses some modified signs that sometimes only me or the school understands. It becomes frustrating for him, and all parties involved when we don’t understand what he needs. I have found myself late at night videotaping Emmett crying, requesting the same sign over and over as I’m not understanding what he’s trying to ask me and texting it to someone from his classroom for help. I really believe this device could make a huge change.”
During the presentation, Melissa went further to tell us Emmett had not been feeling good for weeks and no one could figure out what was wrong with him. Just a few days ago, the doctors were able to pin point his symptoms to believe that Emmett has had lime disease… without a voice, Emmett and his parents have had to live with frustration, but no longer will that be the case.
MEET CHEYENNE & ANTONY WITH THEIR NEW BIKES:
On Monday, August 12th, Variety partnered with PlayWorks and the West Virginia Black Bears to present Cheyenne and Antony (pictured above with some of the players) with their 2nd adaptive bikes (after outgrown their 1st bikes that they received when we kicked off in WV in 2014)!
Cheyenne’s mom, Tracy told us, “The bike allows Cheyenne to be out in the neighborhood and community with friends. It gives her a sense of being a part of the group of kids instead of being left out. Inclusion is so important”
Antony’s mom, Sandra told us, “Having an adaptive bike gives him another avenue to be active and exercise and feel like he can do the things that he sees other kids his again doing. It is a way for him to feel more like a normal child and feel like he can interact with other children instead of having to just watch them.”
MEET ROSE & HER NEW SLICE OF FREEDOM:
Lastly, on August 5th, Variety kicked off its programs with the BLaST IU 17 team, where we were joined by The Honorable Tom Corbett. Rose was one of 10 kids that received their new adaptive bikes, and her family couldn’t have been more thrilled!
Her mom, Joanna told us, “It would also give her a chance to enjoy the outdoors not confined to a stationary chair. I truly believe that receiving an adaptive bike would increase Rose’s quality of life!! She could enjoy voluntary movement, get outside more, and have fun! The motion that an adaptive bike would provide would increase her muscle movement, keep her flexible, and give her a chance to feel like a kid. Every kid should have a bike. The feeling of riding, the peace it brings. The thought of seeing her enjoy something as simple as bike riding makes my heart smile…”
THERE ARE MORE SMILES TO COME, so please stay with us as we keep touring along, as it’s all for the kids!
SPRING TOUR BREAKS VARIETY RECORDS TO HELP MORE KIDS!
We’re thrilled to share that Variety’s Life-Changing SPRING TOUR presented a total of 347 pieces of adaptive equipment to children with disabilities over 18 separate stops throughout our service area.
Specifically, we provided 147 adaptive bikes, 128 communication devices, and 72 adaptive strollers worth $526,000 between April 1st through June 18th — and we couldn’t have done it without our incredible partners, supporters, and friends!
Together… we gave MORE SMILES,
MORE CHANCES FOR COMMUNITY,
AND MORE OPPORTUNITIES FOR LIFE!
A historic amount of equipment was presented over the last two and a half months, and we couldn’t have done it without our community of committed helpers. Thank you for sharing in the joy of our work and helping us to make sure that more people know Variety exists, so more kids receive this life-changing equipment.
Just last month, 5-year old Ezra received an adaptive stroller and a communication device through Variety’s programs, and this week, we received a VERY SPECIAL update from his mom, Caitlin, who proclaimed on Facebook,
“Best Mother’s Day ever. For the first time in years, Ezra was able to join our family our at a restaurant to eat with the help of his new adaptive stroller. He sat at the table so nicely and I was so proud! So many little victories I’ll never take for granted!”
Caitlin also told us that Ezra has made significant progress in the past month with his new communication device, “Out of the silence, the roaring lion! Ezra is starting to talk! Years and years of prayers and waiting and prayers and crying and prayers and hoping and prayers and pleading.
My. Ezra. Is. No. Longer. Silent. He’s trying with everything in him to repeat my words and sounds. This is just the beginning. Because of the communication device, you should see the joy on Ezra’s face when he knows he is being understood!”
To get a feel for Ezra, I thought you might enjoy this very quick video to appreciate how speedy Ezra is in using his device —- his voice (click here to watch).
This update not only brings me sincere joy, but it fills me with a greater passion to do even more for kids like Ezra and moms like Caitlin because these MOMENTS MATTER.
Jace is 7 years old, nonverbal, and recently received a communication device AND adaptive stroller from Variety. The impact that these two pieces of equipment are going to have is incredible!
To give you a better idea, his mom Kim explained the challenges that are often hidden to us, but she and Jace live every day. I hope that you can read and take in Kim’s words, as they truly shine a light on what our families face, and how Variety is providing a bit of hope along the way.
- Kim told us, “I cannot communicate with him. He cannot tell me even his most basic needs and wants. He cannot tell me if he is scared, if he’s in pain, if something is wrong.
- I’m at a loss… whoever thought it would be this hard. It’s so frustrating as a parent. Everything gets put on hold. Because of his physical challenges, I don’t even know what he can and cannot do because he can’t tell me.
- Receiving the communication device gives me hope. Hope that I’ll be able to understand what he understands. Hope that he can communicate what he’s struggling with so that I can help him. Hope that I will truly be able to understand him… I worry about what I do not know.”
Kim also went further to tell us how the adaptive stroller would make a significant impact,
“I cannot take him as well as his 3-year old typical brother out because if one of them gets away from me, I can’t leave the other to get him. It is not just exhausting, it is scary. Jace is also getting too heavy to lift. The stroller will enable us to go out and participate in the community. It is terrible to be isolated, especially in the winter.”
Our work is certainly not the solution to all of life’s problems, but I feel privileged that we can provide such life-changing equipment to these amazing kids and their families. It is giving them a bit of HOPE to keep going and strength to push through the challenges that they face each day.
This is absolutely incredible! Reagan’s family used their adaptive stroller to climb to the very top of Bryce Canyon in Utah to see the morning sunrise, and they got to do it TOGETHER as a family.
Reagan, age 9 (pictured above with her mom), received an adaptive stroller through Variety’s “My Stroller” Program a few years ago, and her mom Kelly told us how incredible the stroller has been for them,
“We applied and received an adaptive stroller first, which was a huge blessing. In fact, two summers ago, we went out West. My dad has Parkinson’s and it was on his bucket list, so we wanted to make that happen. With the stroller, we made it up Bryce Canyon, and my husband decided that ALL of us (since it was a once in a lifetime opportunity) need to reach the top of Bryce Canyon. We woke up at 4:30 in the morning to see the sunrise, and my husband put Reagan into her stroller, and he pushed her all the way up the mountain. So, I know you can reach the top of a mountain with this stroller.”
More recently, Reagan received her new adaptive bike from Variety, and Kelly told us they have big plans for it, “We do a lot of camping, so that’s where the bike comes in. It will offer her adventure and even some freedom!”
Kelly goes into even more detail about the stroller’s impact in this video. Check it out and listen to Kelly’s amazing words first-hand.
Over the course of one-week, Variety partnered with the Appalachia Intermediate Unit 8 and the Capital Area Intermediate Unit to impact 37 local kids throughout the Central PA region!
TAKE A MOMENT & SHARE IN THESE SMILES!
Kids like Tori (pictured below) received their brand new adaptive bike in partnership with AIU#8 on Monday, January 7th. Upon seeing her bike for the first time, Tori exclaimed with joy, “THERE SHE IS! THERE SHE IS!” Tori also gave her bike the name, “Gorgeous.”
Tori’s mom, Mary Ann told us prior to the presentation,
“Over the years, we tried to get Torrance to ride a 2-wheeled bike, but she has a hard time with balancing and is scared of falling. Tori will watch her neighborhood peers ride their bikes and she just wants to ride with them. Getting an adaptive bike will help her enjoy her friends riding bikes together and not feel left out and different. During her first bike ride at the presentation, she was smiling from ear-to-ear and was riding her new bike with speed and no fear for the very first time.”
Additionally, Mia (pictured below) received her new communication device with AIU#8.
Mia’s mom, Anita described what this device will mean, “Mia began trialing a communication device in the Spring of 2018, and it has been a catalyst for her understanding of what communication is and showing our family what she is capable of. One day, Mia showed us on her device how to spell her first name and last name without any prompting. We were shocked as we had no idea she knew that. We laughed, we cried, and celebrated. A device has given us hope and we would love for Mia to always have this opportunity to talk and showcase her cognitive ability. She has many obstacles, but having a device makes life at home and school a little easier.”
When Variety presented adaptive equipment this past Monday, January 14th with the CAIU, Emma received her new adaptive stroller (pictured below with her mom and sister).
Previously, Emma received an adaptive bike through Variety, and her mom, Jackie described the impact of this equipment, “Emma got a bike and we’ve incorporated it into her home-based instruction as an incentive, so it is all about the bike (she loves her bike). With the stroller, Emma can walk, but not very long distances, so it will be huge for our family because we don’t have to be isolated. I can take Emma and her sister out together versus only one of them at a time. The stroller will help us be able to do more things as a family and help Emma reach her best potential.”
AND HERE’S ONE LAST SMILE…
Brothers, James and Willoughby both received their new bikes at the CAIU and couldn’t have been more excited about it!
As we dive into the New Year, I hope that you’ll take a moment to reflect on the reason for Variety’s work with me.
For kids with disabilities, life can have a great deal of obstacles, unexpected setbacks, and financial stresses that not only impact the child, but their entire family. The needs and challenges of these children are often invisible to the community-at-large. Variety’s work strives to equip these amazing kids with equipment that is individually customized for them to meet their needs and give them greater opportunities for their life.
An adaptive bike is provided through Variety’s “My Bike” Program with every bike being tailored and manufactured for each child to give them the chance to ride a bike (many for the first time in their lives).
An adaptive stroller is provided through Variety’s “My Stroller” Program, and this customized piece of equipment is used for easier mobility throughout the community and to keep kids safe (who might be runners).
A communication device is provided through Variety’s “My Voice” Program and gives children living with a communication disorder (or are nonverbal) a restricted device loaded with a prescribed communication app that allows kids to have a voice at all times wherever they go.
In 2019, Variety’s priority is to identify every single eligible child that could benefit from our programs with kids being able to apply for one, two, or all three programs.
A very Happy New Year to you – may it be the best year yet.
This holiday season, Variety had the chance to present more than 80 pieces of adaptive equipment during 5 presentations to kids with disabilities, and it was pure JOY, JOY, JOY!
In partnership with the Central Intermediate Unit #10, Forbes Hospital, PlayWorks, Range Resources, and Saint Vincent Hospital, we presented 35 adaptive bikes, 15 adaptive strollers, and 32 communication devices (worth $123,900).
Here’s a few highlights to smile along with us!
Zane received his new adaptive bike AND communication device during a presentation with PlayWorks in Morgantown, WV. His mom, Autumn described the bike’s impact simply by saying, “Zane loves being outdoors. He struggles with a regular bike, so he usually chases his sister rather than getting to ride with her.” Now, Zane will get to just be a kid and ride bikes alongside his sister.
For Brylee and her parents, a communication device will have a significant impact to daily life. Her mom, Candace told us,
“Though our daughter can be verbal, she really isn’t. When you ask Brylee ‘how was your day,’ or ‘what did you do in school today,’ or ‘what do you want for dinner,’ her response is usually silence. On occasion she will give you just a repetitive response she has heard a million times and what she thinks to be the appropriate response, but it’s mostly a one-sided conversation…which has been one of the most heartbreaking things.
Another big hurdle for us is not knowing what could be wrong with our daughter when she is sick, or when something is hurting her. When you have a child that just starts crying her eyes out for no reason, but cannot communicate to you that her belly hurts, or that she stepped on something and now her foot hurts because she has no way to communicate to you is very freighting.
Being able to know what is wrong with her when she is sick and being able to have more conversations with her that are no longer one sided is huge!”
After Noah got his new adaptive stroller at Range Resources, he and his mom were planning to take a stroll around the Mall at Robinson – something they struggled to do previously. His mom, Christine told us, “We can’t wait for Noah to get his stroller. It will make going to and from school so much easier. We will be able to go to the mall, out for walks, and to the amusement park without worrying about Noah running away. We will not have to strain so much carrying him as well.”
During our five recent presentations, we were grateful to have local media coverage, which will hopefully enable more kids to be identified and receive this life-changing equipment. Click on the links below to share in Variety’s “Tour de Joy”.
- Presentation with Forbes Hospital (Allegheny County):
- Presentation with Range Resources (Allegheny County):
- Pittsburgh Post-Gazette
Happy Holidays to you and your family!