Summer’s New Voice… & Friend

Summer, age 5 from Fayette County not only received her new communication device, but she also got a new best friend – a Variety Buddy Bear.

Summer is posing with her new buddy bear!

Summer’s mother, Linda sent the below photo and said, “Summer had to have her bear strapped in the car seat like her… and they have been inseparable since.”

Linda also told us her hope for Summer’s new communication device,

“I believe this will help Summer to better communicate her needs. 

Summer is a smart little girl, however, the lack of understanding of her speech within the family as well as when out in the community, makes it very hard for her to enjoy herself.

Summer’s Grandfather, for example, cannot make sense of more than 3 to 4 words she says.  He cannot stay with her for long periods of time by himself, as he does his other grandchildren, due to the lack of unintelligible speech she has.

Summer also has separation anxiety when I must take her places. She requests that I stay with her if possible to make sure people including kids can understand her enough to where she is comfortable.

Overall, I feel if Summer receives a communication device, her self-confidence will significantly increase. I feel this will also help her with her teachers so that they can treat her the same as her peers.”

Summer is one more child who now has a voice – thanks so much for all that you continue to do.

25 Kids Impacted. 25 Lives Changed.

William is pictured below next to his new bike and surrounded by his friends from the Rotary of Westmoreland, who generously sponsored his bike.

Last Wednesday, Variety held TWO PRESENTATIONS of adaptive equipment with the Westmoreland Intermediate Unit 7 (over lunch), and then with the Tuscarora Intermediate Unit 11 (over dinner) – with their entire team at each IU joining in to celebrate our kids.

Altogether, 25 kids with disabilities received an adaptive bike, adaptive stroller, and/or communication device (worth $35,700 in equipment).

At WIU7, we were all warmed by William, who couldn’t have been more excited to receive his new adaptive bike. He even showed us his “celebration dance”, which you can watch for yourself by clicking here.

Kassie is checking out her new device.

Additionally, Kassie received her new communication device at WIU7, and her mom Shila described how it has opened her world,

Since Kassie has been using her trial device at school and at home, she has brightened up immensely with excitement to share her words. I can hardly find the words to express the difference this communication device has made for Kassie these past few weeks. It has opened her world. I am amazed at how well she can manage the talker app. It has given her a voice and she is talking.”

We had some great coverage from both presentations, which tell the stories and smiles of our kids – check them out:

Our incredible partnerships with the Tuscarora Intermediate Unit 11 and Westmoreland Intermediate Unit 7 truly changed 25 kids’ lives last Wednesday, and we’re hopeful that together, we can find even more kids for adaptive equipment!

A Double Dose of Impact, Joy, & Smiles!

Group shot following our parade!

Last week, we had two days of presentations to provide a total of 57 pieces of adaptive equipment worth more than $80,000 worth of equipment provided by Variety.

Variety presented 8 adaptive bikes, 12 adaptive strollers, and 23 communication devices (and fit 8 more kids for their adaptive bikes) last Thursday, April 11th at the Blackburn’s Showroom in the Pittsburgh Mills Mall. It was especially memorable to have Allegheny Valley Hospital’s Citizens School of Nursing join in on our celebration (see group photo above).

We also had the chance to meet twin sisters, Samantha and Sydney, who couldn’t be more excited to each receive their new adaptive bikes! They’re pictured below with their parents and AVH President & CEO Jeffrey Carlson, who also joined us for the special day.

During last Thursday’s presentation, Sydney told us,For me personally, I was never able to ride a bike because I was scared of falling...”

Samantha and Sydney are pictured with their family and AVH President & CEO Jeffrey Carlson.

Additionally, Variety partnered with Intermediate Unit #1 on Tuesday, April 9th to present 5 adaptive bikes, 2 adaptive stroller, and 7 communication devices (with two kids receiving multiple pieces of equipment). It was especially exciting to have Washington County Commissioner Diana Irey Vaughn join us for this special day of celebration.

Cole, age 4 received an adaptive bike AND a communication device last Tuesday.

Cole is pictured on his new bike next to his parents and Commissioner Irey Vaughn (left), and then checking out his new device (right).

His mom, Katherine told us how her active son would be impacted by this new bike,  

“Our family is very active. We enjoy camping, hiking, taking walks to the park and other family outings. We would love to take both of our sons for bike rides. We believe that given the chance, Cole would love to go for rides with his brother and with the family and it would improve his muscle control and coordination”

Katherine then explained how this device would be life-changing for Cole,

“For our family, this device means understanding what Cole wants and needs instead of just guessing, allowing him to talk to his teachers and therapists at school, and with the rest of his classmates! Once he has a device, I am so excited to hear what he has to say and what he knows already! I’m sure he is going to surprise us all! ”

These moments are worth remembering as you push through your week, as more than 50 kids now have an adaptive bike, adaptive stroller, and / or communication device to help them live life more fully.

New Gifts for Mason & Khloe

On Friday, March 22nd, Variety got to present 6 adaptive bikes, 4 adaptive strollers, and 2 communication devices to local kids with the outstanding Riverview Intermediate Unit 6 team, and it was one amazing day!

Mason can’t wait to try out his new bike!

One of these kids was Mason, age 14, who received his new BLUE adaptive bike.

His mom, Felicia told us,

As an active family, especially in the summer, we do a lot of camping. Many of the campgrounds have paved roads for biking. Mason would benefit so well with the bike so that he would be able to join everyone and feel as he was part of the crowd as well.”

Mason also received an adaptive stroller, and his mom continued to tell us,

Aside from camping, we also enjoy going to festivals, walks and theme parks. The stroller would benefit us so well without the bulk of a wheelchair and the struggle of pushing it through large crowds. We try to involve Mason in everything we do as an active family, but sometimes we had to rearrange our plans because of equipment issues.”

Additionally, we presented 2 adaptive bikes, 1 adaptive stroller, and 5 communication devices to kids from Beaver County on Wednesday with the amazing team at the Beaver Valley Intermediate Unit.

Khloe and her mom pose above at the presentation.

It was especially exciting to present a communication device to Khloe, age 6, whose mom, Brittany reminded us how much communication is taken for granted, and much this equipment means,

“My daughter is completely nonverbal, and she will not use sign language or PECS to communicate. As her mom, I feel the need for a communication device is critical to her learning and understanding of language. If she is hurting, lost or needs help, how is a stranger supposed to know what she needs or wants? Due to her Autism diagnosis there are many obstacles she faces and her being non-verbal is a huge burden for her. A communication device will lift that burden.”

Check out these articles done by The Derrick (click here to read) AND The Beaver Times (click here to read)!

I Hope You Can Read Kim’s Words…

Jace is 7 years old, nonverbal, and recently received a communication device AND adaptive stroller from Variety. The impact that these two pieces of equipment are going to have is incredible!

Jace is pictured above showing off his new device!

To give you a better idea, his mom Kim explained the challenges that are often hidden to us, but she and Jace live every day. I hope that you can read and take in Kim’s words, as they truly shine a light on what our families face, and how Variety is providing a bit of hope along the way.

  • Kim told us, “I cannot communicate with him. He cannot tell me even his most basic needs and wants. He cannot tell me if he is scared, if he’s in pain, if something is wrong.

  • I’m at a loss… whoever thought it would be this hard. It’s so frustrating as a parent. Everything gets put on hold. Because of his physical challenges, I don’t even know what he can and cannot do because he can’t tell me.

  • Receiving the communication device gives me hope. Hope that I’ll be able to understand what he understands. Hope that he can communicate what he’s struggling with so that I can help him. Hope that I will truly be able to understand him… I worry about what I do not know.”

Kim also went further to tell us how the adaptive stroller would make a significant impact,

“I cannot take him as well as his 3-year old typical brother out because if one of them gets away from me, I can’t leave the other to get him. It is not just exhausting, it is scary. Jace is also getting too heavy to lift. The stroller will enable us to go out and participate in the community. It is terrible to be isolated, especially in the winter.”

Jace is feeling comfy in his new stroller.

Our work is certainly not the solution to all of life’s problems, but I feel privileged that we can provide such life-changing equipment to these amazing kids and their families. It is giving them a bit of HOPE to keep going and strength to push through the challenges that they face each day.

A Great Day in Rural PA w/ IU#9!

This past Monday was SENSATIONAL as we presented 5 adaptive bikes, 2 adaptive strollers, and 3 communication devices to kids with disabilities at Seneca Highland Intermediate Unit 9 — that’s 10 pieces of adaptive equipment to kids in rural Pennsylvania!!

Jake is pictured above with his new device and teammates.

Jake, age 17, received his new communication device during Monday’s presentation. You might remember Jake from his recent feature on CBS Evening News and defeated Bradford Area High School wrestler, Dillon (who was otherwise undefeated) – click here to watch the news story.

Dillon and two other teammates joined Jake (their honorary wrestling captain) for this monumental day (see photo above).

Jake’s mom Mary Jo told us beforehand,

Jacob has always been non-verbal. We do some sign language, but much of it is modified due to his poor fine motor skills. He uses an iPad as a method of communication. This gives him not only the ability to communicate, but a sense of independence.

He’s a junior in high school and will leave school in one more year. Our goal is to have him as prepared as possible to communicate because not everyone in the community knows sign language. What’s great about having an iPad is that other kids have devices, so Jake doesn’t stand out or feel different. The device gives him choices – like to say what he wants for dinner.

He tells me ‘I love you’ and this will be the only way I hear it from him because he’s nonverbal.”

Jake’s new device will be solely dedicated to his communication (without games or any distractions), and it will truly be his voice at all times.

Additionally, Nattely (who turned 5 on Tuesday) received her new PINK adaptive bike, and she had been asking about for weeks leading up to the presentation.

Nattely is all smiles on her new PINK bike!

Her mom, Gina told us, “She is so excited. Nattely can’t ride a bike on her own, but as soon as she got on the adaptive bike, she just started going. It was the best thing. I can’t even put into words how happy it makes us.”

To share in the joy of Monday’s presentation, you can also check out this article that appeared in The Bradford Era, which appeared on the front-page of Tuesday’s newspaper (click here).

New Gifts for Mason & Khloe

On Friday, March 22nd, Variety got to present 6 adaptive bikes, 4 adaptive strollers, and 2 communication devices to local kids with the outstanding Riverview Intermediate Unit 6 team, and it was one amazing day!

One of these kids was Mason, age 14, who received his new BLUE adaptive bike.

Mason is all smiles on his new bike!

His mom, Felicia told us,

As an active family, especially in the summer, we do a lot of camping. Many of the campgrounds have paved roads for biking. Mason would benefit so well with the bike so that he would be able to join everyone and feel as he was part of the crowd as well.”

Mason also received an adaptive stroller, and his mom continued to tell us,

Aside from camping, we also enjoy going to festivals, walks and theme parks. The stroller would benefit us so well without the bulk of a wheelchair and the struggle of pushing it through large crowds. We try to involve Mason in everything we do as an active family, but sometimes we had to rearrange our plans because of equipment issues.”

Additionally, we presented 2 adaptive bikes, 1 adaptive stroller, and 5 communication devices to kids from Beaver County on Wednesday with the amazing team at the Beaver Valley Intermediate Unit.

Khloe is pictured above with her mom.

It was especially exciting to present a communication device to Khloe, age 6, whose mom, Brittany reminded us how much communication is taken for granted, and much this equipment means,

“My daughter is completely nonverbal, and she will not use sign language or PECS to communicate. As her mom, I feel the need for a communication device is critical to her learning and understanding of language. If she is hurting, lost or needs help, how is a stranger supposed to know what she needs or wants? Due to her Autism diagnosis there are many obstacles she faces and her being non-verbal is a huge burden for her. A communication device will lift that burden.”

Check out these articles done by The Derrick (click here to read) AND The Beaver Times (click here to read)!

A SMALL JOY for Owen’s Mom

This past January, we presented 4-year old Owen with a communication device in Altoona. Owen has autism. Less than a month later, we received a note from Owen’s mom Jessica. It is another reminder of the things that we all take for granted are major moments in the lives of these families.

Owen checks out his new device with his parents.

Jessica said, I just wanted to share with you a small joy we had this week. We have slowly been integrating the “my voice” device and Owen has taken to it when it comes to requesting food choices. I thank you from the bottom of my heart what seems like such a simple task for a child is something my son struggles with daily. This gives me hope that he will take to it to request items to play with, etc. Thank you for giving this mother hope!

These moments might not appear as significant to many, but for our families (and us at Variety), it’s the small moments that have the greatest impact. These moments of joy give our families hope.

Climbing A Mountain w/ the Stroller? IT HAPPENED!

This is absolutely incredible! Reagan’s family used their adaptive stroller to climb to the very top of Bryce Canyon in Utah to see the morning sunrise, and they got to do it TOGETHER as a family.

Reagan, age 9 (pictured above with her mom), received an adaptive stroller through Variety’s “My Stroller” Program a few years ago, and her mom Kelly told us how incredible the stroller has been for them,

“We applied and received an adaptive stroller first, which was a huge blessing. In fact, two summers ago, we went out West. My dad has Parkinson’s and it was on his bucket list, so we wanted to make that happen. With the stroller, we made it up Bryce Canyon, and my husband decided that ALL of us (since it was a once in a lifetime opportunity) need to reach the top of Bryce Canyon. We woke up at 4:30 in the morning to see the sunrise, and my husband put Reagan into her stroller, and he pushed her all the way up the mountain. So, I know you can reach the top of a mountain with this stroller.

More recently, Reagan received her new adaptive bike from Variety, and Kelly told us they have big plans for it, “We do a lot of camping, so that’s where the bike comes in. It will offer her adventure and even some freedom!”

Kelly goes into even more detail about the stroller’s impact in this video. Check it out and listen to Kelly’s amazing words first-hand.

A New Discovery for Jacob — don’t miss his joy!

Our “My Voice” Program and the impact it can have continues to amaze us all, and we want everyone to share in Jacob’s joy and that of his mother and brother on Valentine’s Day. The three of them joined us last week at a Press Conference to find more eligible kids.

Jacob is pictured above with his mother Eileen and brother Evan.

Eilleen sent the following update to our CEO last night:

Charlie,

I was listening to your story about Mia and her brother using her iPad to ask Alexa to play Baby Shark.  It took me 2 days to think how that could help Jacob. 

Well, today I figured it out!  We have a voice remote for our T.V.  Jacob tries, very unsuccessfully most of the time, to tell our remote what he wants to watch.  I thought of an idea.  Why don’t we program Touchchat with pictures of all his favorite shows.  Now he can use his iPad to ask the remote to turn on his favorite shows.  Evan was able to help with finding pictures of all of his favorites. 

When we sat with him to teach him how to do it, he was so excited.  The first thing he wanted to try was the Penguins logo!  Sure enough, he got what he wanted.  Now he is watching the Pens beat Edmonton!!!

Thank you for all you do for our kids.

Eileen

Then, she e-mailed this 20-second video, which shows Jacob using his communication device for the first time to get the Penguins game on TV independently!

Jacob’s JOY at being able to do this himself is a reminder for all of us that this is very special work that we’re engaged in. We are giving kids the opportunity to do for themselves, the very things we take for granted.

P.S. On this Valentine’s Day, a day of love for one another, Eileen shines as an example of the love all our moms have in their hearts for these extraordinary children and youth.