KDKA News Highlights Elopement & Impact of Stroller

In terms of having an immediate impact on a child’s life, and the lives of their whole family, an adaptive stroller has been critical, especially for kids with elopement issues.

However, the need for this equipment, as well as the impact it can have are invisible to the majority of us – e.g. this isn’t your typical toddler stroller.

Don’t miss this transformative news story by KDKA’s Kristine Sorensen that features Kristin, mother of Kolton, who intimately shares the impact of an adaptive stroller with us all.

Pittsburgh-area family credits charity with life-changing device – click the link to watch and share.

The story also features Dr. Alan Kohrt, former Board Member, American Academy of Pediatrics, who provided striking data and expertise on kids with elopement issues (see below).

Thank you for being a part of the Variety community, where IT’S ALL ABOUT THE KIDS!

P.S. You can help us spread the word that My Stroller exists by sharing this story with your network – https://www.cbsnews.com/pittsburgh/news/variety-the-childrens-charity-pittsburgh-life-changing-devices/

Joey Experienced Fall w/ Adaptive Stroller

Amanda recently detailed how her son’s adaptive stroller ensured that Joey didn’t miss out on experiencing his favorite time of the year, the FALL!

Amanda began by explaining some of the heart break along Joey’s journey, but the ending is truly all smiles for their whole family – don’t miss reading to the end.

We’re so grateful to Amanda, who shared with us,

Halloween, or maybe just everything ‘Fall’ related, has always been Joey’s favorite time of the year!

He loves the pumpkin patch, corn mazes, apple picking, leaf covered trails, etc.

However, Joey was diagnosed with brain cancer at 5, and his life -saving treatments affected his ability to walk.

Although, he is making great strides with rehabilitation, it’s a very long journey and Joey continues to remain wheelchair-bound at 7 years old.

We tried a simple pumpkin patch last year, with Mom bearing the brunt of the piggy back rides! Fortunately for Joey, he continues to grow as a normal child would. Unfortunately for mom, Joey is heavy!!

Honestly, I didn’t think we would ever be able to navigate Joey’s favorite season/holiday again.

Fall Festivals, especially in hilly Western PA, just aren’t wheelchair friendly beyond the farmer markets…..

We cannot thank you enough for Joey’s stroller that he received in August!

We’ve been to fields, on gravel, and even walked to the local pond with his class.

Today, we ventured to a Fall Festival!!”

Joey’s mom further explained why an adaptive stroller impacts their entire family, by saying,

“Joey’s adaptive stroller helps us navigate terrain that is more difficult for his wheelchair. It allows Joey to attend his brother’s sporting events easier, since many soccer fields are difficult for wheelchairs.

In addition, the stroller helps his grandparents take him places, since the stroller is easier for lifting into their vehicles, and it can fit!

The stroller also helps Joey’s older brother navigate Joey to fun places and not always have to rely on mom and dad to do the pushing!”

With more than 100 applications in-process for kids that need their own adaptive stroller, your support has never been greater for this program.

Every Child Deserves A Voice.

With the help of our kids and families, we created a Documentary Short entitled, Every Child Deserves A Voice, which explores the tremendous need of kids living without a voice, and the incredible impact that’s being created through our My Voice® Program.

Please take 15-minutes to watch and truly understand what a communication device means, and help us to share this video anywhere you can to make this invisible issue visible.

Right now, My Voice also has 400 communication devices funded through the PA Department of Community and Economic Development, and we’re ready to present them to eligible kids that need their own device.

Also, we continue to look for every eligible child that needs a voice, and we want to find more than 400 kids to emphasize the critical need.

We sincerely appreciate your time to watch, share, and help us, help even more kids that need their own communication device!


PLEASE WATCH & SHARE,

Every Child Deserves A Voice.

A Documentary Short featuring Tyler, Mia, Janessa, Brooke, and Rowan.

No child should live without a way to communicate.

Help us share the word locally that 400 communication devices are available by:

  • sharing the video and info. on social media;
  • confirming with other families in your network that they know about our communication program;
  • asking if your child’s school will kindly inform all students of our free programs;
  • asking your employer to kindly distribute the information to all employees;
  • submitting information in a local newsletter or e-mail blast;
  • reaching out to local groups to help distribute the information (your congregation, parent group).

For any family interested in applying or re-applying for a communication device, you learn more at www.varietypittsburgh.org/my-voice/overview.

If anyone has questions or needs an application mailed to them, please feel free to call our office at 724-933-0460 or email us at info@varietypittsburgh.org.

 

Our My Voice® Program is financed {in part} by a grant from the Commonwealth of Pennsylvania, Department of Community and Economic Development as well as generously funded by community donations.

Embracing Their Struggles & Providing HOPE

It’s another reason to smile, as Maryn’s mom, Jolie explained the daily challenges their family faces, and the ways that Variety helped to make life better.

Jolie shared,

People don’t see the struggles we go through on a daily basis to normalize life for our kids and get them out into the community… It is overwhelming and difficult.

For example, breaking down a large wheelchair is really tough. If you don’t have family around to help, it is even more difficult. And, no one understands.

Variety is a blessing and Maryn’s adaptive stroller makes such a difference!

Maryn also received a communication device, and now she has a voice!

Just now, she let us know with her device that she wanted something to drink, so we were able to get her a drink.

You can see the frustration and the meltdowns when Maryn can’t communicate, but this device truly gives her a voice.

The device helps us understand all these things that make her world go round. It takes so much stress off of not just Maryn, but the family as a whole.

Maryn has a twin sister, Amae, who also received an adaptive bike from Variety… your organization has been such a blessing for our family.”

“My son elopes all the time…”

Our work truly revolves around experiencing each family’s needs, fears, and daily challenges first-hand.

For instance, we often hear about kids that are “elopers” or runners, and have no awareness of their own safety or surroundings – forcing many families to be trapped inside their houses out of fear because they don’t have a way to keep their child safe.

We fully take in each family’s stories, and they are the real heroes in this work, but we are fortunate provide something tangible to help make life easier, like an adaptive stroller!

Recent recipient Declan is pictured above in his new adaptive stroller, and to fully take in how much the equipment means, please read what his mom, Petra shared,

My son, Declan, is 5 years old and has a tendency to elope all the time, and it is very hard to keep him contained.

He likes to run off and keep running.

He has even escaped our home before, and we now have to keep a clamshell on all the outside door knobs.

When we are out and about, he walks with me while I hold his hands, but he still often runs off very quickly.

It has often been hard to go on walks, especially in places with heavy traffic or lots of people.

He’s too big for any typical stroller, so I’ve been searching for some type of stroller that fits him and can keep him safe/comfortable.

His therapist introduced me the My Stroller Program, and I thought… how perfect this equipment will be.”

With Declan’s new adaptive stroller, he will be able to go anywhere in the community and be safe!!

6,000 and Counting!!

A few months ago, we officially surpassed 6,000 pieces of life-changing equipment presented to kids with disabilities – something we all can celebrate, together!

#6,000 was a communication device for 4-year-old, Noah, who is using it above to request chips!

His mom, Lucrecia explained why her son needs his own communication device and the difference it will make on a daily basis, by saying,

“I am writing to you as the mother of a toddler, who has been diagnosed with Autism.

As you can imagine, when we received this news it was very hard to take in, but as a family, we are trying to make the best of a challenging situation.

A mother’s love for her child is unparalleled.

I have so much love and compassion for my son, Noah, and on his behalf, I want to advocate for him to have all the opportunities that I can offer him, especially as he starts his journey of learning and living in this world.

I enrolled him in a Program that has assisted him in his development, and he recently had a breakthrough success. He was completely non-speaking when he started the Program, and then the other day, he verbally said two words, ‘Go’ and ‘Yea.’

I broke down in tears of joy by this tremendous moment!

Having his own communication device to utilize 24/7 will make all the difference in the world, especially with Noah’s learning and development.

This communication device will also have a huge impact on us, his parents, as well as Noah’s brother and sister because he will be able to communicate with everyone around him.”

After receiving his new communication device from Variety, Lucrecia told us, “Thank you again so much to everyone that has Helped myself and my Babyboy. I want to thank Them a million times!!”

“That just makes my heart leap!”

Last Tuesday, we had a conversation with Wren, mother of 5-year-old Bjorn (pictured below), who received his own communication device from Variety in February… and we simply can’t stop talking about it!

Wren explained all the ways that having a communication device has truly changed her son’s life, and her own, by saying,

“Since receiving the communication device, Bjorn has gone from being a completely non-speaking child, to using his device to communicate with everyone, and it has been the most beautiful transformation to watch!!

Now, Bjorn is SO HAPPY because the device is easy for him to use and he gets his points across… he requests things, identifies things, picks his clothes out every morning, and even says what he wants to do next…

He’ll use his device to say, ‘Going to grammy’s house!’ with a smile.

Bjorn put his own picture in there and loves introducing himself to others – the device has been like a miracle.

I can’t wait to see where the device takes him because now, he has no more limitations.

Bjorn talks to me in the car with his device, and since receiving it, our relationship is so much closer now that we can communicate and that just makes my heart leap.

He’s in preschool and starting Kindergarten next fall, and through his device, he shows us that he knows so much! He knows his shapes, numbers, and places, and he loves that it’s speaking the words for him.

Bjorn takes ownership of the device, and he takes it everywhere he goes. His confidence is truly soaring because of the communication device.”

Some Quick Joy!

We simply wanted to share some QUICK good news to brighten your day.

Now that Grace has her own communication device, she is simply “going to soar” in life, as her Speech Language Pathologist, Alix shared,

“Grace was presented her device today with her mom and class!
We are so thrilled and excited, and her er reaction to it was priceless!
The first thing she did was request her favorite snack, goldfish, and say ‘HI’ to her favorite peer in her classroom.
We are all so thankful for this opportunity and equipment for Grace.
You at Variety were our light at the end of the tunnel, and we can’t wait to watch Grace soar because of you!
THANK YOU!!!”

A Life-Changing Partnership!

We are thrilled to share this video that highlights our newly formed partnership with Z&M Harley-Davidson in Greensburg!

Travis (pictured below) was the first of many youngsters that will have their lives transformed by our partnership with Z&M, who have a goal of sponsoring 20 more pieces of equipment this year.

Before receiving his new bike, Travis’ mom, Kelly shared this with us,

“Z&M is the first place Travis met the Easter Bunny and Santa Claus, and his dad, Ed bought a Harley there. So, it is an important place for him and getting his adaptive bike will make him feel special! With the adaptive bike, Travis will now have his own ‘set-of-wheels’ like his dad.

Travis will finally have the freedom to ride bikes alongside his little sister. This bike will give our whole family chances to spend more quality time together outdoors, so we’re all looking forward to it! The bike will make him feel free and special and in control.”

We were so grateful to the Latrobe Bulletin for capturing all the joy of this partnership in this article, so don’t miss reading it!

little things are the big things

A few weeks ago, we met 6-year-old, Morgan and her mom, Janae, as we presented Morgan with her own adaptive stroller!!

This very special mom-daughter duo reminded us not to take my life for granted, but to live life and take every day with gratitude, especially the little moments.

At the presentation, Janae looked us in the eyes with all the emotion you can imagine, and she simply said, “Now, we won’t be stuck at home anymore...

And, because they had an adaptive stroller, Janae and Morgan were able to be “on-the-go” immediately after leaving the presentation, as Janae shared with us below!

Janae joyfully shared the above photo and these words,

“Morgan and I had a wonderful, stress-free time in Lowe’s after the presentation. We purchased a few plants for the house, and tomato seeds because we love to grow Morgan’s favorite vegetable. We even picked paint swatches for a room make over.

After that we went to BJ’S and then our last stop was McDonald’s. Thank you so much again for this gift… I have been crying tears of joy all day!”

At the presentation, Jane spoke very openly as she has 4 children, 3 of which are on the spectrum, but because Morgan has no safety awareness, she has had to miss out on a lot of things.

Janae had to recently miss one of her son’s big high school sports moments because she couldn’t take Morgan there safely. Now, she doesn’t have to miss anything!

These two helped us realize how often we take for granted that we can “run out” to the store for food or medicine or an emergency, but for Janae and Morgan, it was impossible until they got an adaptive stroller.

Let’s all remember that small moments can change our lives the most, so take on every day with gratitude.