Making an Impact in the Midst of a Pandemic: PART 1

Dear Variety Friends:

I trust you and your family are all safe and well during this challenging time.

As I take time to reflect, I am truly grateful for all your support over the years and for believing in our work to change the lives of kids with disabilities.

With thanks, I want to send you a series of emails (starting with part 1 today) about the impact we’re having during the pandemic because I thought you would especially appreciate it.

In the midst of this pandemic, I have been inspired and had my life changed by a 17-year old named Corey, who is unstoppable!

This is one of the most incredible stories I have ever shared with you and amazing on many levels. I am sorry it is long… but I guarantee that you will be so grateful that you took in the whole story.

Corey is pictured above with his parents.

Critical background:
Corey receives therapy services and educational programming at Leg Up Farm in York County, Pa.

He had never ridden an adaptive bike until he rode one at Leg Up Farm.

Ever since, he wanted to have one at home, and he was scheduled to receive an adaptive bike and communication device at Leg Up Farm on April 3rd. Every day, he would ask his Speech Language Pathologist, Lu, Is my bike there? Is my bike there?

Corey’s mom, Michelle said that she and her husband (retired army) both love riding bikes, and were excited about the possibility of being able to ride with Corey as a family.

This opportunity to ride together has even more importance because Michelle is battling cancer and currently receiving chemotherapy. She wanted Corey to get the bike while she was healthy enough to ride with him.

April 3, 2020:
The presentation at Leg Up Farm was cancelled because of the pandemic.

Michelle was disappointed about having to wait for the bike, but also that Corey would not receive his communication device because, “Corey is partially verbal – he tries to say everything he reads and tries to communicate, but it is hard to understand him, which is where the device really helps him.”

April 9, 2020:
Michelle approached Lu, who called us, and with Corey’s Occupational Therapist, Nicole, and the leadership of Leg Up Farm, we created a way for Corey and other kids to receive communication devices and adaptive bikes in the middle of the pandemic!

May 9, 2020:
The Saturday before Mother’s Day, Corey received his new communication device thanks to a Special Delivery by Lu to his home.

Corey is pictured holding his new device, which came as a special delivery at his home!

May 15, 2020:
Corey received his adaptive bike at Leg Up Farm.

Corey is taking his new bike for a ride with his dad beside him!

Michelle said, “Thanks to the bike and the device, Corey is making connections with neighbor kids he didn’t have before. This has meant the world to him. He just spent the last two hours playing with kids he has never played with before until now, and they live right around us.”

Tuesday, May 19, 2020:
Corey’s SLP Lu sent us an update, “I am just amazed at how he has blossomed in the last couple days with both the bike and the talker. He so desperately wants to have friends and that bike has given him a way to meet them. Instead of just watching them, now he is joining in. Variety didn’t just give him a bike, it opened up a whole new world for him. Variety has truly made a difference in his life!”

Check this out – here’s a video that Corey filmed himself from a Zoom meeting with Lu and his mom.

And to top it all off!

After only having his device for 10 days and his bike for 5 days, Lu said,  It really was wonderful to see him being so independent with his device. He knew exactly what he wanted to tell you and he wanted to do it completely by himself. Now that he’s seeing just how much he can do by himself, he is gonna be unstoppable!”

Does it honestly get much better than this – that in the midst of a pandemic, in partnership with the therapist and his parents, Corey is becoming empowered to live a dramatically different life.

COREY, THE UNSTOPPABLE… I love it!

Take good care,

Charlie

Charles P. LaVallee
Chief Executive Officer
Variety – the Children’s Charity

The Impact Doubled for Brayden & Brooke!

On Monday, January 27th, Variety presented adaptive equipment in Erie, and what a day it was!

6-year old Brayden received a communication device AND a bike, and you have to read what his mom shared…

Brayden is pictured above with his mom and new equipment!

“Brayden is nonverbal, so he doesn’t speak, so this device is going to really help him. And it’s just, it gets tough because I’m a single mom at home, I have limited income and I have another child who’s high functioning autistic. She speaks and everything, but she’s just having some trouble with emotions and dealing with others.

And so we just take one day at a time, but he’s just – all of these kids with special needs are such blessings, but it’s hard, it’s really hard sometimes. And you just want to make it as normal for them as possible, because they have enough challenges, so you just want to give them love and help them communicate as best they can. So I’m very thankful.”

Earlier that day, Variety held a Press Conference with City of Erie Mayor Joseph Schember, Saint Vincent Hospital CEO Dr. Christopher Clark, representatives from Intermediate Unit 5, Barber National Institute, and others from the Northwestern corner of Pa. to make a big push to identify every eligible child who could benefit from their own communication device.