Yesterday, we had a terrific presentation of 5 adaptive bikes, 5 adaptive strollers, and 2 communication devices in Clearfield County in partnership with the Central Intermediate Unit #10. It was thrilling to give out so much equipment in a rural area!
My thanks to Board Member Mickey Sgro for making the time to join us and help make the day go smoothly! I was especially excited because we got to present the equipment during an all IU Special Education Director meeting, which will hopefully help to increase identification of kids in the area.
In particular, David, age 9 received an adaptive bike alongside his good friend, Zahir, age 9 who received an adaptive stroller.
When asked by the media if he was excited about his bike, David responded with smile, “I have never rode a bike before. I feel happy. Very happy to get a bike!”
Additionally, I took a pause after hearing what Zahir’s mom, Catherine said regarding the impact of his stroller. Zahir has a wheelchair that is hard to break down and is also very heavy. It has always prevented him from getting to go into a McDonald’s, where his favorite food is French fries.
When he heard he was getting his new adaptive stroller, he immediately asked his mom (with excitement) if they could go to McDonald’s after the presentation and go INSIDE for the first time. Of course, his mom promised with a smile. She went further to say, “He doesn’t get the opportunity like other kids to do the simple things in life.” This stroller is helping to make one more opportunity possible.
We were also joined by WJAC-TV and The Progress Newspaper, who helped us to capture the day (see links below). I think you’ll especially enjoy reading about Lydia, age 13 and the impact her new bike is going to bring (Progress News article).
At Variety’s 2018 Gala on November 2nd, our kids truly SHINED as they rode, strolled, or walked in our “Kids Parade” that kicked off an evening of hope. For the 12 kids that joined us, it was truly a “peak moment” where they got to be spotlighted for their amazing abilities rather than their disabilities.
- We asked everyone in the room to commit to sharing this special video on social media or via e-mail to help get the word out far and wide – more than 450 attendees raised their hands as a promise to us and our kids.
- You can watch the video by clicking here: https://www.youtube.com/watch?v=Jr7TYhLT3QI
- Will you also commit to sharing this video with your colleagues, family, and/or friends in hopes of finding more kids that could benefit from Variety’s programs?
- Our goal is to find 100% of kids that could benefit from our programs, and you taking one minute to share could help one more child receive their own adaptive bike, adaptive stroller, or communication device.
Variety was also grateful to honor two amazing individuals during our 2018 Gala, Tim Wiebe and Mickey Sgro, who have dedicated their time and resources to help change kids’ lives. You can see more photos from the event by clicking here.
Thank you for your time and your belief in the importance of Variety’s work and mission to enable children with disabilities to live life to the fullest. We could not do it without you, our mighty Variety team!
Yesterday, we celebrated the holiday season early in Wheeling, West Virginia!
Variety partnered with Southwestern Energy on Thursday, November 8th to host a special presentation for local kids in the Wheeling region to receive new adaptive equipment, and we were even joined by Wheeling Mayor Glenn Elliott!
In total, Variety presented 4 adaptive bikes, 2 adaptive strollers, and 1 communication device, as well as fit 4 more kids for a bike or stroller (i.e. the last step before ordering equipment). Excitingly, two of the kids yesterday received multiple pieces of equipment, as Variety does not put a limit on families receiving more than one piece of equipment. If a child is eligible and can benefit, we want families to have it.
It was a VERY special moment for parents Kathy and Vernon, as they watched their 8-year old boy, Levi receive his very own adaptive bike. It got even more special as Variety fit Levi’s twin sister, Emmalee for HER adaptive bike!
Here’s what Kathy shared with us during the presentation,
“I have twins. This is Emmalee and this is Levi. They are both autistic, and even though Emmalee speaks, she can’t answer yes or no questions to let us know if she was hurt.
Before coming here today, I heard about Variety’s other programs, including their “My Voice” Program, and that’s big for us because we have never heard Levi talk, as he is nonverbal. Recently, Levi has started to verbalize sounds, which is huge for us.
And now for the first time, he’s going to be able to ride a bike after. It is going to give my child more freedom, which is huge!”
This might be our most incredible video ever highlighting the impact of Variety’s “My Bike” and “My Voice” Programs.
Once again, Variety was given the opportunity to speak to hundreds of labor leaders from around Pennsylvania this week. These labor leaders were deeply moved by the video (video above) and committed to doing even more for Variety. Plus, we were presented with a $3,000 check to sponsor another bike and device!
The experience was especially meaningful for USW District 10 Director, Bobby “Mac” McAuliffe, who rode an adaptive bike into the conference to great celebration by everyone in attendance (photo above). It was great for the attendees to see the USW Director for Pa. ride an adaptive bike and to realize how important the bike would be if it was their child or grandchild.
We are overwhelmed with gratitude by the support, commitment, and time that has been given to Variety and our kids, but we know how much more is still needed. Let’s keep things rolling forward, together!
34 More Kids Received Life-Changing Equipment. Something that will help them find greater possibilities for their own lives!
“Connor would love to go bike riding with his two brothers in the neighborhood. This bike will make him feel like a normal boy who has his own bike. He also received an adaptive stroller from Variety, and it has made life a lot easier. We can go anywhere, and Connor doesn’t feel uncomfortable like he does in his wheelchair because people point and stare.” -said Debra, Connor’s grandmother
This past Wednesday, July 25th, Variety presented 34 more pieces of adaptive equipment to kids with disabilities at the Pittsburgh Mills Mall hosted by Blackburn’s.
These children (like Connor) now have an opportunity to discover EVEN MORE possibilities for their lives, and be a kid, first and foremost.
Ryan, age 17 received an adaptive stroller and communication device on Wednesday.
It was a surprise for Ryan to see his best friend, Jacob at Wednesday’s presentation, but the two couldn’t have been more excited. They both play for the Mighty Pens sled hockey team, and Jacob has been volunteering his time as an Ambassador to Variety to help impact more kids.
Ryan’s mom, Sue described what this equipment would mean by saying,
“With this stroller, Ryan can go out with his siblings without mom, or with extended family or friends who don’t have an adaptive van to transport his wheelchair. He’s going to be 18 soon and he wants that. The device will also make a huge difference. Our family has gotten very good over the years with understanding him, but Ryan can now tell us why he’s feeling the way he is or be able to ask us questions. There was no way before for him to do that.”
To make the day even more special, Ryan used his new communication device immediately on Wednesday to talk to his best friend, Jacob.
You can watch what Ryan had to say by clicking here.
Here’s to even more smiles and possibilities rolling on through the summer months!
Reagan, age 10 received her 2nd adaptive bike at Variety’s 2018 Golf Invitational on Monday, June 4th, and she’s pictured “all thumbs up” in the photo below. Previously, she received an adaptive stroller and communication device through Variety.
Recently, we received an update from Reagan’s mom, Kim, who really put into perspective the impact and experiences that Variety’s equipment are providing to our kids and their entire family.
“I wanted to drop you a note to share 2 exciting things with you…
- Reagan got on her new, blue bike the day after the presentation and rode with her sister for a LONG time and giggled the whole time. Her sister would ride down the road and then turn around and ride toward her and they would high five each other in passing. Reagan found that hilarious! What a wonderful experience for sisters to have that is ALL because of this adaptive bike program and the wonderful staff at Variety!! Her grandparents just moved to a new house with a great alley that is quiet and great for riding with all 4 of her cousins this Summer.
- Reagan competed in her 1st pageant for children with special needs. There were 8 contestants (group photo below). She modeled a gown and blew kisses to the crowd, performed a dance number to “Shake it Off” by Taylor Swift, and answered questions on stage USING HER COMMUNICATION DEVICE!!! She answered basic info about herself AND answered questions about what she would do this Summer!!”
Kim’s e-mail grounds us in why we do what we do every day for these amazing kids- giving kids like Reagan a chance to giggle with her sister, wear a gown and showcase her voice in a beauty pageant, and look forward to a summer of fun – just like any other child.
MONDAY MOTIVATION: Last Friday, May 11th, 18 kids with disabilities received an adaptive bike, adaptive stroller, and/or communication device through Variety’s programs at Appalachia Intermediate Unit 8! Here’s a glimpse at our PARADE!
On Friday, March 23rd, Variety presented life-changing equipment at the Capital Area Intermediate Unit (CAIU) to 15 local kids with disabilities with each piece individually tailored to meet their needs.
Prior to our presentation, Janessa, age 11 kicked things off by demonstrating how she uses her communication device – her new voice – that she received from Variety last November.
Since receiving her device, Janessa has been featured in two television spots through Highmark’s Living Proof campaign, one in which she uses her device to talk with her doctor for the first time, and then another to order food at a restaurant for the first time.
One of the most meaningful moments of the event was hearing Janessa’s mom, Julie update us on the progress and impact that has taken place for Janessa, and ultimately, her entire family since receiving her device (her new voice) – click below.
To give you even more to smile about, thanks to Janessa, three of her classmates received communication devices as well, including Ryan, age 9, who was more than a little excited.
His mother, Monique gave voice to how life-changing this device would be by saying,
“Ryan’s greatest ability is his love of reaching out to people and attempting to communicate his wants and needs. He often launches into very long and animated stories complete with hand gestures and big laughs. Unfortunately, his educators, classmates, and many loved ones cannot understand him because they are his own made up words and not real words.
Ryan’s life would improve exponentially with a communication device. As a parent, its heartbreaking to see this deficit. We truly believe a communication device along with hard work on our part, Ryan’s enthusiasm and this device could change his entire social, educational, and emotional lifestyle.”
The March 23rd presentation also featured a terrific “equipment parade” with cheers of celebration that I’m sure you’ll enjoy – click here to watch for yourself.
To our knowledge, history was made yesterday in Morgantown, West Virginia for kids with disabilities.
In one afternoon, Variety hosted the largest presentation of adaptive equipment for children with disabilities with 45 kids receiving equipment (worth more than $70,000) – including 26 adaptive bikes, 8 adaptive strollers, and 11 communication devices.
As we have all come to experience, the kids were truly the stars of the show, like Deklan, age 7, who couldn’t have been more excited as he continually gave “thumbs up” in response to getting his brand new blue adaptive bike!
His mother, Tiffany said with tears,
“Deklan was born at 24 weeks weighing 1lb, 3 oz. and spent close to six months in the NICU. He’s had 5 eye surgeries, a heart surgery, blood transfusions, and he was on oxygen for the first year of his life… he’s been through a lot with many of his surgeries being lifesaving. However, today is a milestone day for Deklan, as he will have his own bike and experience the freedom of riding it, and gain the confidence and the security that he needs to do so on his own.”
Another highlight yesterday was two teenagers, Hannah and Macey, who are best friends.
They did not know until they arrived at the presentation and saw each other that they were both receiving an adaptive bike of their own.
Hannah received a blue bike and Macey a pink one, and they spent the afternoon jumping up and down with joy, hugging each other, screaming with excitement, and telling their parents about all the bike riding they were going to do together. They even got to enjoy the bike parade together.
I wish everyone could have been there to see this phenomenal moment of joy that these two best friends shared – we are so fortunate to be a part of it these beautiful moments.
Check out these three news pieces that came from this beautiful day.
- WBOY-12: http://www.wboy.com/news/local/monongalia-and-preston/organization-provides-children-with-adaptive-equipment/1034239723
- WDTV-5: http://www.wdtv.com/content/news/WV-children-with-disabilities-get-life-changing-equipment-476594683.html
- The Dominion Post: http://www.dominionpost.com/Charity-presents-bikes-to-childr
Variety – the Children’s Charity of Pittsburgh is striving to identify & serve every eligible child that could benefit from its adaptive equipment programs.
Do you know of any children with disabilities that could benefit from an adaptive bike, adaptive stroller, and/or communication device? Variety is currently serving kids in 54 counties in Pa. & WV.
These programs are life changing for kids & their families, but Variety needs help with spreading the word, so no family misses out on these opportunities.
Visit www.varietypittsburgh.org or call their office at 724-933-0460 to learn more or apply. These programs are no cost to eligible families, and you can apply for one, two, or all three programs if your child can benefit!