Last Tuesday, we had a conversation with Wren, mother of 5-year-old Bjorn (pictured below), who received his own communication device from Variety in February… and we simply can’t stop talking about it!
Wren explained all the ways that having a communication device has truly changed her son’s life, and her own, by saying,
“Since receiving the communication device, Bjorn has gone from being a completely non-speaking child, to using his device to communicate with everyone, and it has been the most beautiful transformation to watch!!
Now, Bjorn is SO HAPPY because the device is easy for him to use and he gets his points across… he requests things, identifies things, picks his clothes out every morning, and even says what he wants to do next…
He’ll use his device to say, ‘Going to grammy’s house!’ with a smile.
Bjorn put his own picture in there and loves introducing himself to others – the device has been like a miracle.
I can’t wait to see where the device takes him because now, he has no more limitations.
Bjorn talks to me in the car with his device, and since receiving it, our relationship is so much closer now that we can communicate and that just makes my heart leap.
He’s in preschool and starting Kindergarten next fall, and through his device, he shows us that he knows so much! He knows his shapes, numbers, and places, and he loves that it’s speaking the words for him.
Bjorn takes ownership of the device, and he takes it everywhere he goes. His confidence is truly soaring because of the communication device.”
We simply wanted to share some QUICK good news to brighten your day.
Now that Grace has her own communication device, she is simply “going to soar” in life, as her Speech Language Pathologist, Alix shared,
“Grace was presented her device today with her mom and class!
We are so thrilled and excited, and her er reaction to it was priceless!
The first thing she did was request her favorite snack, goldfish, and say ‘HI’ to her favorite peer in her classroom.
We are all so thankful for this opportunity and equipment for Grace.
You at Variety were our light at the end of the tunnel, and we can’t wait to watch Grace soar because of you!
A few weeks ago, we met 6-year-old, Morgan and her mom, Janae, as we presented Morgan with her own adaptive stroller!!
This very special mom-daughter duo reminded us not to take my life for granted, but to live life and take every day with gratitude, especially the little moments.
At the presentation, Janae looked us in the eyes with all the emotion you can imagine, and she simply said, “Now, we won’t be stuck at home anymore...”
And, because they had an adaptive stroller, Janae and Morgan were able to be “on-the-go” immediately after leaving the presentation, as Janae shared with us below!
Janae joyfully shared the above photo and these words,
“Morgan and I had a wonderful, stress-free time in Lowe’s after the presentation. We purchased a few plants for the house, and tomato seeds because we love to grow Morgan’s favorite vegetable. We even picked paint swatches for a room make over.
After that we went to BJ’S and then our last stop was McDonald’s. Thank you so much again for this gift… I have been crying tears of joy all day!”
At the presentation, Jane spoke very openly as she has 4 children, 3 of which are on the spectrum, but because Morgan has no safety awareness, she has had to miss out on a lot of things.
Janae had to recently miss one of her son’s big high school sports moments because she couldn’t take Morgan there safely. Now, she doesn’t have to miss anything!
These two helped us realize how often we take for granted that we can “run out” to the store for food or medicine or an emergency, but for Janae and Morgan, it was impossible until they got an adaptive stroller.
Let’s all remember that small moments can change our lives the most, so take on every day with gratitude.
Variety’s 2022 SPRING LIFE-CHANGING TOUR continues with nearly 40 more adaptive bikes and adaptive strollers being presented with Central Susquehanna Intermediate Unit 16, AFSCME Council 13, Westmoreland Intermediate Unit 7, Clairview School, and Blackburn’s!
Don’t miss reading why this mobility equipment will truly change the lives of the kids and their families!
It was a big day for twin brothers, Judah and Silas (from Northumberland County), who received their new adaptive bikes, and their mom, Nicole told us why the bikes will make a big difference:
“For Judah, the combination of low coordination and anxiety make it difficult for him to join in on what most consider normal activities.
An adaptive bike will allow him to develop the coordination necessary to not only ride a bike, but to be able to participate in other activities and remove the anxiety and fear holding him back!”
Silas has fought every day to overcome challenges and difficulties from birth, and he still struggles with balance, coordination, and vision. He desperately wants to play with and partake in the same activities as his family, friends, and peers at school, but often struggles and becomes frustrated.
An adaptive bike will not only help improve his balance and coordination, but also his confidence – leading him to gain more independence and freedom!
Two bikes for two brothers – that’s something to make us all smile!
Delilah-Rose from Dauphin County is pictured above on her beautiful new pink adaptive bike, and her mom, Delaina shared:
“An adaptive bike will really help with my daughter’s coordination issues.
Also, she will be able to ride bikes with her cousins who are the same age without them asking me why can’t she play like them.
This bike will build her confidence in being to do something new and keep her self-esteem high because she can now do the same activities as the other children her age!”
Luke from Westmoreland County was beaming with joy on his new adaptive bike, and that night, Luke’s mom shared this beautiful message:
“Luke is beyond elated for his bike and has been talking about it for a couple weeks since we found out we were approved.
He got it today and the whole way home all I heard was, ‘Mommy where’s my blue bike,” and “Mommy I ride my blue bike.’
A huge thank you to the people who donate to Variety to make kids like Luke’s dreams come true, and turning our Luke’s dream of riding with his siblings and keeping up with them a reality.
He is always such a happy determined kiddo and this bike gives him the chance to keep fighting.”
Check out more from our presentation in Westmoreland County by reading this terrific news story by the Tribune Review (Greensburg)!
Last month, we kicked off Variety’s 2022 Spring Life-Changing Tour for Kids, and we presented more than 30 adaptive bikes and adaptive strollers in partnership with Covestro, Midwestern Intermediate Unit 4, Northwest Tri-County Intermediate Unit 5, and Blackburn’s!
8-year old Emily (above) received her second adaptive bike (after outgrowing the first one), and she was ALL SMILES, as she tried it out.
Her dad, Todd explained why it will be transformative for his daughter, by saying, “Emily has a Rifton adaptive bike from Variety that she has outgrown. She loves riding her bike around the neighborhood with her brother, Sam (who also has a Rifton adaptive bike from Variety).
Emily thrives on being independent like her peers. She also cannot walk independently, so the bike helps her to get needed exercise as well.”
9-year old, Robert and his parents (above) were beaming with joy when he received his own adaptive stroller.
His mom, Amanda shared why this piece of equipment means so much, “The adaptive stroller will help us tremendously. It is getting harder for us to pick Robert up and put him down, or carry him for a long distance. We hope the stroller helps us when going places where he will get tired out fast. The stroller we have is very bulky and takes up all the room in the trunk of the car.
With this adaptive stroller, it will allow us to become closer connected because we can stay together while out shopping, touring, vacationing, etc.”
8-year old, Rowan (above) also received his new adaptive bike last month, and his mom, Mandy shared,
“Our hope for Rowan having this bike is that he will be able to have the same opportunity as everyone else. This bike will give us the opportunity to get out in the community more. We have seen him wanting to ride bikes with his sisters as they are learning to ride their bikes
I believe this bike will serve in many great areas of Rowan’s development physically, mentally, and socially. It will also create independence within him, which we hope will give him the self-confidence to try and ultimately to move for himself.”
We have much more to come from our 2022 Spring Tour, so stay tuned for even more reasons to smile.
Imagine if you couldn’t sit up on your own while out in the community… How would you see the world differently?
When Danny received her new adaptive stroller (pictured below with her beautiful service dog), I could tell it was an important day for her AND her family.
Her mom, Marie told us very simply why the adaptive stroller is so important,
“She’s laying down in her current stroller, so this one makes a big difference because with the accessories, it enables her to sit up safely and fit comfortably.
The adaptive stroller will also make transporting her so much easier, since we cannot get her wheelchair into our car.”
As Danny smiled in her new stroller, her grandma, Tracey exclaimed,
“Danny is GLEEFUL because she’s sitting UP in the adaptive stroller!”
Grandma’s level of joy at the presentation was on another level because for the first time, her granddaughter was able to SIT UP and SEE more of the world around her.
All it took was an adaptive stroller to transform Danny’s daily life.
Noah is ON-THE-GO now that he has his own adaptive bike AND adaptive stroller from Variety, and we love the update below that his mom sent me! We hope it makes you smile.
Noah’s mom, Breanne shared,
“My son Noah has received an adaptive bike and adaptive stroller through Variety! We got the bike for Noah, so he can get exercise and enjoy the outdoors (just like us).
Noah loves his bike, and each year as he gets stronger, he’s able to peddle better and better!
We have even had Noah in two local kids bike races! People love cheering on Noah at these events.
I love that he can join his peers in these exciting events, but I also love that people are getting exposed to children like Noah. I hear the kids ask their parents questions about Noah’s bike, and the other parents always say how cool his bike is!
We asked for an adaptive stroller for safety reasons because Noah (like many kids) is an eloper.
Even walking through a parking lot can be scary. Noah will just take off at a moment’s notice, and he doesn’t understand cars or strangers – but now, the stroller keeps him safe.
He is also starting to get to be too big to sit in the cart seats. So, this stroller helps me keep him close by when shopping, and still allows him to come with me as we enjoy that experience together.
I am very grateful that the Variety program offers these to our families, so we can continue to live out in the community as a whole family.”
Variety’s work is truly ALL ABOUT THE KIDS!
P.S. ICYMI – Help to share and support Variety’s KOTG Mobility Campaign, a critical need to fund more adaptive bikes and adaptive strollers for kids, who deserve to be on-the-go.
I hope you’re sitting down because we have some very positive news that might just knock your socks off!
Last month, we presented three-year-old Alessia with her new adaptive bike.
Not only was it a beautiful pink bike, but it was the 1,000th piece of mobility or communication equipment that we’ve presented to kids during the pandemic!
In total, we have presented 1,062 pieces of life-changing equipment during the pandemic (worth more than $1.5 million), and that number goes up almost daily!
Our families tell us constantly how critical this equipment is for their children, and even more so during the pandemic.
Just few days after receiving her new bike, Alessia’s mom sent the below photo, and shared, “Alessia loves her bike, and she has been riding her bike in the house on the stationary stand provided by Variety! She has her baby in the back and her MP3 player and headphones clipped on, and she rides for hours!”
1,062 is our new favorite number. It makes us smile for the kids and their families, and it makes us think of YOU and what we have accomplished together.
We sincerely appreciate each of you for helping to make such incredible impact possible because IT’S ALL FOR THE KIDS!
P.S. You can see a few more photos of Alessia from the day she received her new bike in this Pittsburgh Post-Gazette article!
Have you communicated with someone today?
The reality for many of our kids is that they are living without a voice, and are not able to communicate their needs, wants, or feelings. Just imagine that for a second.
That’s why I’m so proud that our My Voice® Program is giving kids a tool to communicate 24/7 because communication is vital to daily life.
LET’S PAUSE & SMILE FOR BEN!
“I can already tell that it’s going to be a game changer for all of us.” That’s what Susan shared a couple months after her son, Ben received his new communication device (or talker)!
Susan then described a time when Ben used his talker to tell her, “I’m tired,” which she thought was odd at the time because he never expressed that feeling before, but he ended up sound asleep by 6:30pm and he slept THE WHOLE NIGHT.
Susan said, “He must have been tired! But I was so floored and touched and borderline emotional that he expressed that to me.”
LET’S ALSO SMILE FOR KEVIN!!
Kevin’s mom, LaVelle shared one very special moment that happened,
“I looked at Kevin and said, ‘I love you, buddy,’ and he took his talker, oriented himself towards me, and he used it to reply, ‘I love you more!’
Then, without skipping a beat, Kevin put down his talker and threw his arms around my neck and hugged me to demonstrate what he just said.”
Lavelle shared another experience, “Kevin indicated that he needed to go potty with sign language. I kind of dismissed it, but he made it very clear using his talker that he had to go potty now!…
I love that I can now communicate with my son, but more importantly, he can communicate with me!”
These kids are so special, and some just need a way to connect and let people connect with them, and My Voice is giving them that opportunity.
Some good news to bring a smile to your faces.
We partnered with the incredible teams at Covestro and Blackburn’s this past Tuesday to distribute 25 adaptive bikes and adaptive strollers to kids with disabilities!
I hope you’ll take a moment to share in the joy of the day by watching this 40-second piece by KDKA-TV – https://pittsburgh.cbslocal.com/2020/10/28/adaptive-bicycle-charity-donation/.
CARTER’S NEW ADAPTIVE BIKE!
When 8-year old Carter was fit for an adaptive bike in September and trialed one, his mom Lisa shared, “After we got him at 5 months of age, we finally got a diagnosis of his condition and we were told that he would not walk or talk… Well, here he is today riding a bike!!! I’ve never seen him peddle before. This is awesome that he can do it, and now he will be able to go on bike rides with the family.”
Now, Carter is ready for ALL the family bike rides, memories, and fun!
LEVI’S NEW ADAPTIVE STROLLER!
“Where there’s a will, there’s a way,” and for Levi’s family, they found a way to make it to Tuesday’s presentation from Wheeling, WV to receive Levi’s new adaptive stroller!
The stroller will help to keep Levi safe because he is an “escape artist”, as his dad, Harry mentioned at the presentation. When the family goes out into the community, they won’t have to worry about keeping Levi safe.
To describe it further, Levi’s mom, Kathy explained, “I’m unable to walk with Levi because of my health issues, but beyond that, no one else can either. He slips out of your hand in a blink of an eye and runs, FAST. He has already gotten out from our house.”
HANNAH’S NEW ADAPTIVE BIKE!
For 5-year old Hannah, an adaptive bike will let her experience something fun with her siblings! Her mom, Lisa put into words what this bike would mean, “Hannah has 3 siblings, and she loves to go outside with them. They ride bike and scooters with the other kids in the neighborhood, and Hannah would have so much fun if she could follow along and do the same!
She ends up frustrated when the bike won’t move for her, and when we try to push it, her feet get caught under the pedals, so an adaptive bike would be amazing for her!”
Stay tuned for more good news to come soon!