Noah-On-The-GO

Noah is ON-THE-GO now that he has his own adaptive bike AND adaptive stroller from Variety, and we love the update below that his mom sent me! We hope it makes you smile.

Noah’s mom, Breanne shared,

“My son Noah has received an adaptive bike and adaptive stroller through Variety! We got the bike for Noah, so he can get exercise and enjoy the outdoors (just like us).

Noah loves his bike, and each year as he gets stronger, he’s able to peddle better and better!

We have even had Noah in two local kids bike races! People love cheering on Noah at these events.

I love that he can join his peers in these exciting events, but I also love that people are getting exposed to children like Noah. I hear the kids ask their parents questions about Noah’s bike, and the other parents always say how cool his bike is!

We asked for an adaptive stroller for safety reasons because Noah (like many kids) is an eloper.

Even walking through a parking lot can be scary. Noah will just take off at a moment’s notice, and he doesn’t understand cars or strangers – but now, the stroller keeps him safe.

He is also starting to get to be too big to sit in the cart seats. So, this stroller helps me keep him close by when shopping, and still allows him to come with me as we enjoy that experience together.

I am very grateful that the Variety program offers these to our families, so we can continue to live out in the community as a whole family.”

Variety’s work is truly ALL ABOUT THE KIDS!

P.S. ICYMI – Help to share and support Variety’s KOTG Mobility Campaign, a critical need to fund more adaptive bikes and adaptive strollers for kids, who deserve to be on-the-go.

Alessia Marks #1,000 During Pandemic!

I hope you’re sitting down because we have some very positive news that might just knock your socks off!

Last month, we presented three-year-old Alessia with her new adaptive bike.

Not only was it a beautiful pink bike, but it was the 1,000th piece of mobility or communication equipment that we’ve presented to kids during the pandemic!

In total, we have presented 1,062 pieces of life-changing equipment during the pandemic (worth more than $1.5 million), and that number goes up almost daily!

Our families tell us constantly how critical this equipment is for their children, and even more so during the pandemic.

Just few days after receiving her new bike, Alessia’s mom sent the below photo, and shared, “Alessia loves her bike, and she has been riding her bike in the house on the stationary stand provided by Variety! She has her baby in the back and her MP3 player and headphones clipped on, and she rides for hours!”

1,062 is our new favorite number. It makes us smile for the kids and their families, and it makes us think of YOU and what we have accomplished together.

We sincerely appreciate each of you for helping to make such incredible impact possible because IT’S ALL FOR THE KIDS!

P.S. You can see a few more photos of Alessia from the day she received her new bike in this Pittsburgh Post-Gazette article!

Every Child Deserves A Voice 24/7

Have you communicated with someone today?

The reality for many of our kids is that they are living without a voice, and are not able to communicate their needs, wants, or feelings. Just imagine that for a second.

That’s why I’m so proud that our My Voice® Program is giving kids a tool to communicate 24/7 because communication is vital to daily life.

LET’S PAUSE & SMILE FOR BEN!

“I can already tell that it’s going to be a game changer for all of us.” That’s what Susan shared a couple months after her son, Ben received his new communication device (or talker)!

Susan then described a time when Ben used his talker to tell her, “I’m tired,” which she thought was odd at the time because he never expressed that feeling before, but he ended up sound asleep by 6:30pm and he slept THE WHOLE NIGHT.

Susan said, He must have been tired! But I was so floored and touched and borderline emotional that he expressed that to me.”

LET’S ALSO SMILE FOR KEVIN!!

Kevin’s mom, LaVelle shared one very special moment that happened,

“I looked at Kevin and said, ‘I love you, buddy,’ and he took his talker, oriented himself towards me, and he used it to reply, ‘I love you more!’

Then, without skipping a beat, Kevin put down his talker and threw his arms around my neck and hugged me to demonstrate what he just said.”

Lavelle shared another experience, “Kevin indicated that he needed to go potty with sign language. I kind of dismissed it, but he made it very clear using his talker that he had to go potty now!…

I love that I can now communicate with my son, but more importantly, he can communicate with me!”

These kids are so special, and some just need a way to connect and let people connect with them, and My Voice is giving them that opportunity.

Just Some GOOD NEWS

Some good news to bring a smile to your faces.

We partnered with the incredible teams at Covestro and Blackburn’s this past Tuesday to distribute 25 adaptive bikes and adaptive strollers to kids with disabilities!

I hope you’ll take a moment to share in the joy of the day by watching this 40-second piece by KDKA-TVhttps://pittsburgh.cbslocal.com/2020/10/28/adaptive-bicycle-charity-donation/.

CARTER’S NEW ADAPTIVE BIKE!

Pictured above is Carter when he got fit for his bike (left) and him on his new lime green bike (right)!

When 8-year old Carter was fit for an adaptive bike in September and trialed one, his mom Lisa shared, After we got him at 5 months of age, we finally got a diagnosis of his condition and we were told that he would not walk or talk… Well, here he is today riding a bike!!!  I’ve never seen him peddle before. This is awesome that he can do it, and now he will be able to go on bike rides with the family.”

Now, Carter is ready for ALL the family bike rides, memories, and fun!

LEVI’S NEW ADAPTIVE STROLLER!

Levi is pictured above in his new stroller!

“Where there’s a will, there’s a way,” and for Levi’s family, they found a way to make it to Tuesday’s presentation from Wheeling, WV to receive Levi’s new adaptive stroller!

The stroller will help to keep Levi safe because he is an “escape artist”, as his dad, Harry mentioned at the presentation. When the family goes out into the community, they won’t have to worry about keeping Levi safe.

To describe it further, Levi’s mom, Kathy explained, I’m unable to walk with Levi because of my health issues, but beyond that, no one else can either. He slips out of your hand in a blink of an eye and runs, FAST. He has already gotten out from our house.”

HANNAH’S NEW ADAPTIVE BIKE!

Hannah is pictured with her family – all smiles on her new bike!

For 5-year old Hannah, an adaptive bike will let her experience something fun with her siblings! Her mom, Lisa put into words what this bike would mean, Hannah has 3 siblings, and she loves to go outside with them. They ride bike and scooters with the other kids in the neighborhood, and Hannah would have so much fun if she could follow along and do the same!

She ends up frustrated when the bike won’t move for her, and when we try to push it, her feet get caught under the pedals, so an adaptive bike would be amazing for her!

Stay tuned for more good news to come soon!

It’s A BIG DEAL for Mia & Jayla

A MAJOR UPDATE ON MIA!

Mia is pictured above with her device and favorite book!

A few weeks ago, Mia’s mom, Anita shared this exciting update, “I wanted to check in and share some Mia progress, from a proud Mommy. In less than two years, Mia went from nonverbal to reading. We hope this gives you inspiration to keep doing what you’re doing because it all started with a device to give her language.”

DOES IT GET ANY BETTER?

Anita went even further to share a video of Mia showing off her reading skills, and we hope that you can take in how big this is for Mia and her family!

Click here to watch Mia reading Peppa Pig’s “The Best Pet”… with her OWN VOICE!

A BIG MOMENT FOR JAYLA!

Jayla is pictured above – taking her device everywhere!

Having a voice of her own is also a big deal for Jayla and her family. Before receiving her new communication device at the beginning of October, Jayla’s mom, Stephanie explained what it would mean, “This would make a huge impact on our family. We are a low income family with 4 kids, and my husband, who supports the household is a cancer patient currently in remission. We desperately need our little girl to have a voice to help her with the frustration and disappointment of not being understood. It would mean the world to us.”

Two weeks after Jayla received her new voice, Stephanie wrote to us on Facebook with the photos above and this update, “Thank you so much! Jayla is so excited to have her voice! She couldn’t wait to show her friends she can talk to them now!”

For Mia and Jayla, having a communication device is a really big deal. It gives them a voice and another tool in their toolbox to live life to the fullest.

A Voice Means Everything In A Pandemic

A Pandemic Is Scary. Even Scarier Without A Voice.

The pandemic has caused a lot of changes, especially to the way Variety reaches eligible kids and distributes equipment. However, as soon as these changes needed to be implemented in March, we got to work and we haven’t stopped since, especially to provide kids with a voice.

I hope you can take a few moments to read some recent stories of how we are changing the lives of our kids and their families through THE GIFT OF COMMUNICATION!

Presley’s New Voice

Presley and her dad pictured above.

Presley’s family told us what this device would mean, A communication device will help Presley by aiding her to express her needs more clearly and helping our family to better understand her so that we may meet these needs to the best of our ability. We also feel that the device will help Presley learn new vocabulary and apply it in situations in which she might otherwise not be able to.”

John Immediately Asked For A Drink!

John and his mom pictured above.

His SLP, Lucy shared, “John’s device was delivered today. John and his mom were both very excited!  He told her ‘drink’- went to get a drink container from the fridge, and then said ‘please drink’ on the device.  We were both so happy!!  Above is a picture of him with his drink!”

A Device Allows Eli to be Heard & Understood

Eli pictured above with his device!

Eli’s SLP, Katie told us, “Elijah will be delighted to be able to communicate with his family. He gets very frustrated when trying to let us know what he needs. He is a very friendly person and loves to interact with us and I believe this device will enable him request what he wants without us having to narrow down what he is requesting.”

What do you think Aiden requested first with his device?

Aiden pictured above.

You’ll love what Aiden’s SLP, Jennifer shared with us, “After only a few minutes of me demonstrating with mom and giving her instructions, Aiden spontaneously approached the device and requested to “go” and when asked where… he requested “trampoline”.  So of course, we went outside and he was happy as can be. On behalf of his family… thank you so much for the gift of voice for Aiden.”

THANK YOU for sharing in these special moments and being part of Variety’s team.

CELEBRATING TRUE FREEDOM for 61 Schuylkill Co. Kids!

61 kids in Schuylkill County CELEBRATED with TRUE FREEDOM this weekend after recently receiving their new adaptive bikes, adaptive strollers, and/or communication devices!

These 61 kids have the FREEDOM to ride a bike and gain independence, have the FREEDOM to get out in the community easily and safely with their stroller, and have the FREEDOM of a voice with their device. PROVIDING FREEDOM is at the core of what we are giving our kids and their families, and I hope you’ll take a few moments to share in these life-changing moments!

Lyla, age 13 received an adaptive bike:

Lyla is pictured above speaking to WBRE-TV.

Very happy that I finally have that chance to ride a bike and just be happy. Like normal kids because I can’t do a lot of things that normal kids can do,” said Lyla in an interview with WBRE-TV.

You don’t want to miss the full interview to hear more from Lyla and her Grandmother, Sharon, so click below:

Students receive bicycles and strollers made to accommodate special needs

Kareem, age 10 received an adaptive bike:

Kareem is pictured above riding his new bike.

WNEP-TV also joined us, as Kareem and other kids received their new bikes! Kareem’s mom told WNEP, This opens up a whole new world for him to be able to go out and socialize and play with other kids. He can’t ride a regular bike, so this is helping him to go out with his brothers and have a good time that he can’t do without it honestly.”

Click here to see the full piece and watch Kareem ride his bike for the first timehttps://www.wnep.com/article/news/local/schuylkill-county/charity-adapts-bikes-to-assist-children-with-disabilities/523-e6165b8d-54eb-436a-b0b9-cf78fcbf3650

At our core, we want to give kids freedom, and these smiles by The Shenandoah Sentinel truly captures the joy of the day for Kaylonie and Anayamarie!

Kaylonie and Anayamarie are pictured above on their new bikes.

IT’S ALL FOR THE KIDS!

PART 1: Making an Impact in the Midst of a Pandemic

Dear Variety Friends:

As I take time to reflect, I am truly grateful for believing in our work to change the lives of kids with disabilities. With thanks, I want to send you a series of emails (starting with part 1 today) about the impact we’re having during the pandemic because I thought you would especially appreciate it.

In the midst of this pandemic, I have been inspired and had my life changed by a 17-year old named Corey, who is unstoppable!

This is one of the most incredible stories I have ever shared with you and amazing on many levels. I am sorry it is long… but I guarantee that you will be so grateful that you took in the whole story.

Corey is pictured above with his parents.

Critical background:

Corey receives therapy services and educational programming at Leg Up Farm in York County, Pa.

He had never ridden an adaptive bike until he rode one at Leg Up Farm.

Ever since, he wanted to have one at home, and he was scheduled to receive an adaptive bike and communication device at Leg Up Farm on April 3rd. Every day, he would ask his Speech Language Pathologist, Lu, Is my bike there? Is my bike there?

Corey’s mom, Michelle said that she and her husband (retired army) both love riding bikes, and were excited about the possibility of being able to ride with Corey as a family.

This opportunity to ride together has even more importance because Michelle is battling cancer and currently receiving chemotherapy. She wanted Corey to get the bike while she was healthy enough to ride with him.

April 3, 2020:

The presentation at Leg Up Farm was cancelled because of the pandemic.

Michelle was disappointed about having to wait for the bike, but also that Corey would not receive his communication device because, “Corey is partially verbal – he tries to say everything he reads and tries to communicate, but it is hard to understand him, which is where the device really helps him.”

April 9, 2020:

Michelle approached Lu, who called us, and with Corey’s Occupational Therapist, Nicole, and the leadership of Leg Up Farm, we created a way for Corey and other kids to receive communication devices and adaptive bikes in the middle of the pandemic!

May 9, 2020:

The Saturday before Mother’s Day, Corey received his new communication device thanks to a Special Delivery by Lu to his home.

Corey is pictured holding his new device, which came as a special delivery at his home!

May 15, 2020:

Corey received his adaptive bike at Leg Up Farm.

Corey is taking his new bike for a ride with his dad beside him!

Michelle said, “Thanks to the bike and the device, Corey is making connections with neighbor kids he didn’t have before. This has meant the world to him. He just spent the last two hours playing with kids he has never played with before until now, and they live right around us.”

Tuesday, May 19, 2020:

Corey’s SLP Lu sent us an update, “I am just amazed at how he has blossomed in the last couple days with both the bike and the talker. He so desperately wants to have friends and that bike has given him a way to meet them. Instead of just watching them, now he is joining in. Variety didn’t just give him a bike, it opened up a whole new world for him. Variety has truly made a difference in his life!”

Check this out – here’s a video that Corey filmed himself from a Zoom meeting with Lu and his mom.

And to top it all off!

After only having his device for 10 days and his bike for 5 days, Lu said,  It really was wonderful to see him being so independent with his device. He knew exactly what he wanted to tell you and he wanted to do it completely by himself. Now that he’s seeing just how much he can do by himself, he is gonna be unstoppable!”

Does it honestly get much better than this – that in the midst of a pandemic, in partnership with the therapist and his parents, Corey is becoming empowered to live a dramatically different life.

COREY, THE UNSTOPPABLE… I love it!

Take good care,

Charlie

Charles P. LaVallee
Chief Executive Officer
Variety – the Children’s Charity

Ricky exclaimed, “I’M SMILING!”

WE ARE GRATEFUL TO RICKY and our partners at Blackburn’s, who are helping us make sure other kids can get their new adaptive bikes during the pandemic!

Ricky is all smiles above!

I hope you’ll check out this 1-minute video that we put together to thank 10-year old Ricky and highlight how grateful we are for his help! Wait until you hear Ricky at the end of the video. It truly knocked me out with joy!

Ricky continues to give back, as his mom, Michelle told us, Ricky has been so excited about his bike. He gave his 2 wheeler with training wheels to his friend that lives across the street. Now, they can ride together and Ricky is just one of the kids. This is a game changer for him!” 

With great joy, one of our Central Pa. partners are using the training videos to safely give out 5 adaptive bikes this week!

We’re jumping for joy to continue our work of impacting kids with disabilities!

CELEBRATING 10 & Why It’s Important

TODAY AT 4:00 PM, we celebrate Joke #10 in our JOKES WITH JACOB smile series, and we feel it’s something worth celebrating, together! You can keep up with all of Jacob’s jokes on Facebook or YouTube.

For Jacob, and so many other kids with disabilities, this time of “stay at home” has been especially hard, since it’s completely changed his daily activities. It’s changed his life completely.

We cannot forget about our kids and their challenges, especially now. Our kids just want the chance to be part of something.

JOKES WITH JACOB has been an enormous boost for Jacob, as it gives him purpose and helps him to give back to others through laughter. It’s also inspiring others to think of how they can give back. Excitingly, Jacob’s first 9 jokes have reached more than 34,000 people!

We hope that you’ll continue to follow JOKES WITH JACOB, and help make sure that our kids are not forgotten (BUT CELEBRATED) because they have A LOT of joy and beauty to give to us all.