A MAJOR UPDATE ON MIA!
A few weeks ago, Mia’s mom, Anita shared this exciting update, “I wanted to check in and share some Mia progress, from a proud Mommy. In less than two years, Mia went from nonverbal to reading. We hope this gives you inspiration to keep doing what you’re doing because it all started with a device to give her language.”
DOES IT GET ANY BETTER?
Anita went even further to share a video of Mia showing off her reading skills, and we hope that you can take in how big this is for Mia and her family!
A BIG MOMENT FOR JAYLA!
Having a voice of her own is also a big deal for Jayla and her family. Before receiving her new communication device at the beginning of October, Jayla’s mom, Stephanie explained what it would mean, “This would make a huge impact on our family. We are a low income family with 4 kids, and my husband, who supports the household is a cancer patient currently in remission. We desperately need our little girl to have a voice to help her with the frustration and disappointment of not being understood. It would mean the world to us.”
Two weeks after Jayla received her new voice, Stephanie wrote to us on Facebook with the photos above and this update, “Thank you so much! Jayla is so excited to have her voice! She couldn’t wait to show her friends she can talk to them now!”
For Mia and Jayla, having a communication device is a really big deal. It gives them a voice and another tool in their toolbox to live life to the fullest.
A Pandemic Is Scary. Even Scarier Without A Voice.
The pandemic has caused a lot of changes, especially to the way Variety reaches eligible kids and distributes equipment. However, as soon as these changes needed to be implemented in March, we got to work and we haven’t stopped since, especially to provide kids with a voice.
I hope you can take a few moments to read some recent stories of how we are changing the lives of our kids and their families through THE GIFT OF COMMUNICATION!
Presley’s New Voice
Presley’s family told us what this device would mean, “A communication device will help Presley by aiding her to express her needs more clearly and helping our family to better understand her so that we may meet these needs to the best of our ability. We also feel that the device will help Presley learn new vocabulary and apply it in situations in which she might otherwise not be able to.”
John Immediately Asked For A Drink!
His SLP, Lucy shared, “John’s device was delivered today. John and his mom were both very excited! He told her ‘drink’- went to get a drink container from the fridge, and then said ‘please drink’ on the device. We were both so happy!! Above is a picture of him with his drink!”
A Device Allows Eli to be Heard & Understood
Eli’s SLP, Katie told us, “Elijah will be delighted to be able to communicate with his family. He gets very frustrated when trying to let us know what he needs. He is a very friendly person and loves to interact with us and I believe this device will enable him request what he wants without us having to narrow down what he is requesting.”
What do you think Aiden requested first with his device?
You’ll love what Aiden’s SLP, Jennifer shared with us, “After only a few minutes of me demonstrating with mom and giving her instructions, Aiden spontaneously approached the device and requested to “go” and when asked where… he requested “trampoline”. So of course, we went outside and he was happy as can be. On behalf of his family… thank you so much for the gift of voice for Aiden.”
THANK YOU for sharing in these special moments and being part of Variety’s team.
61 kids in Schuylkill County CELEBRATED with TRUE FREEDOM this weekend after recently receiving their new adaptive bikes, adaptive strollers, and/or communication devices!
These 61 kids have the FREEDOM to ride a bike and gain independence, have the FREEDOM to get out in the community easily and safely with their stroller, and have the FREEDOM of a voice with their device. PROVIDING FREEDOM is at the core of what we are giving our kids and their families, and I hope you’ll take a few moments to share in these life-changing moments!
Lyla, age 13 received an adaptive bike:
“Very happy that I finally have that chance to ride a bike and just be happy. Like normal kids because I can’t do a lot of things that normal kids can do,” said Lyla in an interview with WBRE-TV.
You don’t want to miss the full interview to hear more from Lyla and her Grandmother, Sharon, so click below:
Kareem, age 10 received an adaptive bike:
WNEP-TV also joined us, as Kareem and other kids received their new bikes! Kareem’s mom told WNEP, “This opens up a whole new world for him to be able to go out and socialize and play with other kids. He can’t ride a regular bike, so this is helping him to go out with his brothers and have a good time that he can’t do without it honestly.”
Click here to see the full piece and watch Kareem ride his bike for the first time: https://www.wnep.com/article/news/local/schuylkill-county/charity-adapts-bikes-to-assist-children-with-disabilities/523-e6165b8d-54eb-436a-b0b9-cf78fcbf3650
At our core, we want to give kids freedom, and these smiles by The Shenandoah Sentinel truly captures the joy of the day for Kaylonie and Anayamarie!
IT’S ALL FOR THE KIDS!
Dear Variety Friends:
As I take time to reflect, I am truly grateful for believing in our work to change the lives of kids with disabilities. With thanks, I want to send you a series of emails (starting with part 1 today) about the impact we’re having during the pandemic because I thought you would especially appreciate it.
In the midst of this pandemic, I have been inspired and had my life changed by a 17-year old named Corey, who is unstoppable!
This is one of the most incredible stories I have ever shared with you and amazing on many levels. I am sorry it is long… but I guarantee that you will be so grateful that you took in the whole story.
Corey receives therapy services and educational programming at Leg Up Farm in York County, Pa.
He had never ridden an adaptive bike until he rode one at Leg Up Farm.
Ever since, he wanted to have one at home, and he was scheduled to receive an adaptive bike and communication device at Leg Up Farm on April 3rd. Every day, he would ask his Speech Language Pathologist, Lu, “Is my bike there? Is my bike there?”
Corey’s mom, Michelle said that she and her husband (retired army) both love riding bikes, and were excited about the possibility of being able to ride with Corey as a family.
This opportunity to ride together has even more importance because Michelle is battling cancer and currently receiving chemotherapy. She wanted Corey to get the bike while she was healthy enough to ride with him.
April 3, 2020:
The presentation at Leg Up Farm was cancelled because of the pandemic.
Michelle was disappointed about having to wait for the bike, but also that Corey would not receive his communication device because, “Corey is partially verbal – he tries to say everything he reads and tries to communicate, but it is hard to understand him, which is where the device really helps him.”
April 9, 2020:
Michelle approached Lu, who called us, and with Corey’s Occupational Therapist, Nicole, and the leadership of Leg Up Farm, we created a way for Corey and other kids to receive communication devices and adaptive bikes in the middle of the pandemic!
May 9, 2020:
The Saturday before Mother’s Day, Corey received his new communication device thanks to a Special Delivery by Lu to his home.
May 15, 2020:
Corey received his adaptive bike at Leg Up Farm.
Michelle said, “Thanks to the bike and the device, Corey is making connections with neighbor kids he didn’t have before. This has meant the world to him. He just spent the last two hours playing with kids he has never played with before until now, and they live right around us.”
Tuesday, May 19, 2020:
Corey’s SLP Lu sent us an update, “I am just amazed at how he has blossomed in the last couple days with both the bike and the talker. He so desperately wants to have friends and that bike has given him a way to meet them. Instead of just watching them, now he is joining in. Variety didn’t just give him a bike, it opened up a whole new world for him. Variety has truly made a difference in his life!”
Check this out – here’s a video that Corey filmed himself from a Zoom meeting with Lu and his mom.
And to top it all off!
After only having his device for 10 days and his bike for 5 days, Lu said, “It really was wonderful to see him being so independent with his device. He knew exactly what he wanted to tell you and he wanted to do it completely by himself. Now that he’s seeing just how much he can do by himself, he is gonna be unstoppable!”
Does it honestly get much better than this – that in the midst of a pandemic, in partnership with the therapist and his parents, Corey is becoming empowered to live a dramatically different life.
COREY, THE UNSTOPPABLE… I love it!
Take good care,
Charles P. LaVallee
Chief Executive Officer
Variety – the Children’s Charity
WE ARE GRATEFUL TO RICKY and our partners at Blackburn’s, who are helping us make sure other kids can get their new adaptive bikes during the pandemic!
I hope you’ll check out this 1-minute video that we put together to thank 10-year old Ricky and highlight how grateful we are for his help! Wait until you hear Ricky at the end of the video. It truly knocked me out with joy!
Ricky continues to give back, as his mom, Michelle told us, “Ricky has been so excited about his bike. He gave his 2 wheeler with training wheels to his friend that lives across the street. Now, they can ride together and Ricky is just one of the kids. This is a game changer for him!”
With great joy, one of our Central Pa. partners are using the training videos to safely give out 5 adaptive bikes this week!
We’re jumping for joy to continue our work of impacting kids with disabilities!
For Jacob, and so many other kids with disabilities, this time of “stay at home” has been especially hard, since it’s completely changed his daily activities. It’s changed his life completely.
We cannot forget about our kids and their challenges, especially now. Our kids just want the chance to be part of something.
JOKES WITH JACOB has been an enormous boost for Jacob, as it gives him purpose and helps him to give back to others through laughter. It’s also inspiring others to think of how they can give back. Excitingly, Jacob’s first 9 jokes have reached more than 34,000 people!
We hope that you’ll continue to follow JOKES WITH JACOB, and help make sure that our kids are not forgotten (BUT CELEBRATED) because they have A LOT of joy and beauty to give to us all.
Variety would like to invite you to the PREMIERE of JOKES WITH JACOB, a social media Smile Series that hopes to bring a smile to your face.
Beginning this Wednesday, April 1st at 4:00 PM on Variety’s Facebook Page!
Jacob has truly inspired us with his attitude, especially in light of all the adversity he’s faced in his life.
23-year old Jacob has been involved with Variety since a young age and received adaptive equipment. What really stands out to us about Jacob is his strong desire to give back and help more kids.
His jokes are beautiful and his laugh is “out-of-this-world” funny.
A few years ago, Jacob joined Variety for a presentation to speak with a group of employees from across Pennsylvania. He used his jokes (told through his communication device) to not only make the nearly 400 attendees laugh out loud, but they were also able to see Jacob, not as a person with extra needs, but as a regular yinzer. Because of Jacob, those attendees were so inspired and raised $40,000 to sponsor 35 more kids with their own communication device!
We believe a smile can change the world. It has the power to inspire us, lift us up, and remind us that there is beauty all around us.
We hope that you will tune into our Facebook Page this Wednesday, April 1st at 4:00 PM to view the first of many, many jokes from Jacob.
Please like, comment, and share, so that we can bring a smile to as many people as possible! Then, check back every Monday, Wednesday, and Friday at 4:00 PM for a new episode of JOKES WITH JACOB!
We are in this together, and together, let’s keep smiling. We believe you won’t be able to help but smile when you see Jacob laugh at his joke.
Tree of Life Rabbi Myers was on GMA this past Friday morning, and he made a terrific point when he said that we need “PHYSICAL distance from others at this time but SOCIAL connection.” Such a good point that we need social connected-ness. We are grateful for our connection and all that we have done and are doing for kids with disabilities.
At this challenging time, we wanted to send you a small reminder about the power of a smile.
Issac makes me smile because I know that he has a communication device to not only help him find freedom in communication, but, as his mom describes below, it will help to lessen his own daily frustration.
Issac’s mom, Morgan describes why this device is needed, “Issac’s functional communication has always been a struggle, and it is clearly a source of frustration for him when he tries to communicate but can’t find the words he needs. Since he started speech therapy, Issac has continued to develop a vocabulary of useful words for requesting objects and observations. With this equipment, we can continue to support Issac as his vocabulary grows, and it is our hope this will help decrease frustration.”
Let’s strive to keep our social connection and find every moment to SMILE!
3-year old Hazel was all smiles, as she checked out her new communication device (and ate a tangerine). She received the device last Tuesday through Variety’s My Voice® Program, and we are still beaming with joy for her and her entire family.
Her mom, Mary told us,
“Hazel wants to communicate. She tries so hard to tell us what she wants and what she’s thinking, but she runs into the limitation of her ability very quickly. While Hazel communicates with sign language, she only has about five spoken words, and it’s very difficult for her to form words.
A device like this would be life-changing for us, as it would give her another way to speak to us, and it would give her a consistent aid in hearing spoken words to help her build her own vocal abilities.”
This communication device is a tool for kids like Hazel to find their voice, and be able to express their wants, needs, and feelings to those around them. I don’t know about you, but I would love to hear what Hazel has to say now with her device!