Tree of Life Rabbi Myers was on GMA this past Friday morning, and he made a terrific point when he said that we need “PHYSICAL distance from others at this time but SOCIAL connection.” Such a good point that we need social connectedness. We are grateful for our connection and all that we have done and are doing for kids with disabilities.
At this challenging time, we wanted to send you a small reminder about the power of a smile.
Issac makes me smile because I know that he has a communication device to not only help him find freedom in communication, but, as his mom describes below, it will help to lessen his own daily frustration.
Issac’s mom, Morgan describes why this device is needed, “Issac’s functional communication has always been a struggle, and it is clearly a source of frustration for him when he tries to communicate but can’t find the words he needs. Since he started speech therapy, Issac has continued to develop a vocabulary of useful words for requesting objects and observations. With this equipment, we can continue to support Issac as his vocabulary grows, and it is our hope this will help decrease frustration.”
Let’s strive to keep our social connection and find every moment to SMILE!
When 4-year old Nik received his communication device, he was BEAUTIFULLY surrounded by his parents, siblings, grandparents, and even his aunt and uncle. All of whom came to the presentation to celebrate this life-changing day and to show their commitment to helping him every step of the way.
Nik’s mom, Nikol gave us perspective to why she was originally hesitant to try a communication device, and the impact it has since had on her son,
“Watching your child struggle with something is one of the hardest things. Especially when that struggle is with communication.
We as Nikolas’s parents… growing up… we would never think twice about being able to verbally communicate. Something, we feel we took for granted.
We have tried to be so proactive with helping him communicate. When Nik’s speech therapist asked us about utilizing an iPad in class to help Nikolas, we had a concern that it would hurt more so than help Nik. ‘Would he use the iPad and not want to try to speak?’ We were worried, but after support from his teacher and speech therapist, we decided to try it.
To our surprise Nik seemed to come home, almost daily, and it felt like he was able to verbally communicate more that day or week than the last. Janet asked if we were interested in having one at home and without hesitation we happily said ‘YES!’
To have Nik come home and not struggle with verbally communicating his wants as much, whether picking up more words or utilizing the iPad, would be such a blessing.”
After receiving his device, Nikol sent us this 30-second video of him using it to tell her what he wanted:
Thank you for believing in Variety’s work and helping us, help more kids.
3-year old Hazel was all smiles, as she checked out her new communication device (and ate a tangerine). She received the device last Tuesday through Variety’s My Voice® Program, and we are still beaming with joy for her and her entire family.
Her mom, Mary told us,
“Hazel wants to communicate. She tries so hard to tell us what she wants and what she’s thinking, but she runs into the limitation of her ability very quickly. While Hazel communicates with sign language, she only has about five spoken words, and it’s very difficult for her to form words.
A device like this would be life-changing for us, as it would give her another way to speak to us, and it would give her a consistent aid in hearing spoken words to help her build her own vocal abilities.”
This communication device is a tool for kids like Hazel to find their voice, and be able to express their wants, needs, and feelings to those around them. I don’t know about you, but I would love to hear what Hazel has to say now with her device!
On Monday, January 20th, Variety held its first presentation of equipment in Schuylkill County in partnership with Schuylkill Intermediate Unit 29, organized labor, and many other community partners. It was a phenomenal day, as Variety presented 28 adaptive bikes, 3 adaptive strollers, and 32 communications devices!
For 11-year old twins, Madelyn and Kaylynne, it was an especially memorable day, as these sisters both received their very own adaptive bikes!
Madelyn also received a communication device, and the first thing she said to her mother through the device was, “I NEED CAKE,” because she wanted to celebrate the new bikes and her communication device (her new voice)
A few hours later Monday night, I received this photo from her mom (below), and they were celebrating the day with CAKE!
This may seem like a little thing, but it was HUGE for this family.
A tremendous thanks to the IU29 staff who were incredibly motivated and are already planning for our next presentation to keep the momentum going! This is a powerful example of how kids can be identified and provided with life-changing equipment, even in a predominantly rural county like Schuylkill.
Additionally, we received great media coverage to help you share in the joy of the day – see below.
- WNEP-TV: https://wnep.com/2020/01/20/students-with-disabilities-get-life-changing-equipment/
- Republican Herald: Click here to read the full article.
Thanks so much for sharing in the joy of our kids and families.
P.S. I hope that you’ll have some CAKE this week to celebrate with Madelyn and all our kids! The Variety team celebrated right away!
SPRING TOUR BREAKS VARIETY RECORDS TO HELP MORE KIDS!
We’re thrilled to share that Variety’s Life-Changing SPRING TOUR presented a total of 347 pieces of adaptive equipment to children with disabilities over 18 separate stops throughout our service area.
Specifically, we provided 147 adaptive bikes, 128 communication devices, and 72 adaptive strollers worth $526,000 between April 1st through June 18th — and we couldn’t have done it without our incredible partners, supporters, and friends!
Together… we gave MORE SMILES,
MORE CHANCES FOR COMMUNITY,
AND MORE OPPORTUNITIES FOR LIFE!
A historic amount of equipment was presented over the last two and a half months, and we couldn’t have done it without our community of committed helpers. Thank you for sharing in the joy of our work and helping us to make sure that more people know Variety exists, so more kids receive this life-changing equipment.
This is Effie, who received an adaptive bike AND communication device through Variety. Now… she’ll have voice to communicate their thoughts and feelings, as well as a bike to be included and have fun with their friends / family! Read below for more on this extraordinary girl.
4-year old Effie first received her adaptive bike through Variety this past April, and then just this past Tuesday, Effie got her new communication device!
Her mom, Erin described to us during the presentation why this device is SO important, and as a father / grandfather, it was hard to take in.
“Effie got hurt at school. The teacher knew something was wrong. The teacher called me right away and I too knew something was wrong as soon as I saw Effie, but Effie couldn’t tell us what was wrong.
We took her to the doctor – who knew something was wrong and that she was in pain, but Effie couldn’t tell us. It took four days and three doctor visits to figure it out — Effie had a fractured leg. We got her the treatment and she is a happy girl again… With her new communication device, hearing her interact with her family and friends will be terrific and to get to know her will be amazing!”
Erin also gave us an update on how the bike has impacted Effie and her family, “Now, we go to North Park and go on the bike trails where everyone else is riding. Effie does it by herself – just like everybody else. She is riding, and it is AMAZING… thank you for what is a life-changing opportunity for our daughter.”
Not only did we provide Effie with a bike that she’s able to ride, but we provided her with a voice that she can use at all times. It’s our hope to provide this equipment to every eligible child that needs it, and to maximize their possibilities in life!
Recently, we had two incredible presentations with the Allegheny Intermediate Unit 3 on Wednesday, May 22nd and the Appalachia Intermediate Unit 8 on Monday, May 20th to present adaptive bikes, adaptive strollers, and communication devices!
Allegheny Intermediate Unit 3:
Excitingly, we held our first presentation in partnership with AIU3, and their team went all out to make the day extra special with balloons and a welcoming warmth. We presented 13 adaptive bikes, 3 adaptive strollers, and 3 communication devices, as well as fit 4 more kids for bikes.
We were especially grateful to have Allegheny County Executive Rich Fitzgerald and Pennsylvania State Senator Pam Iovino join us for the special day and celebrate our kids.
Sam’s mom, Danielle explained the bike’s importance by saying, “This bike is vital to Sam getting exercise. He is not able to walk unassisted now and even a walker is too difficult, so he mostly gets around in his medical stroller and sits a lot of the day. The bike gives him independence to get around and work his muscles and get some exercise.”
Ella’s mom, Sarah also told us, “As her Mother, it is heartbreaking to have to explain that there are certain limitations that Ella must endure for her own safety and due to her ability.
The positives that would come from Ella having an adaptive bike seem endless – building muscle strength, coordination and flexibility, improved balance, motor skills and body awareness. The list goes on! For our family, this bike is so important because Ella can finally feel what it is like to get out there and go, especially with her siblings! She just wants a chance to keep up with the other kids.”
Appalachia Intermediate Unit 8:
Additionally, we presented 11 adaptive bikes, 11 adaptive strollers, and 7 communication devices, as well as fit 2 more kids for bikes with AIU8!
For Taylor, age 7, a new adaptive bike means A LOT, and her mom, Ashlee explained why, “As Taylor gets older, she is realizing things she is unable to do that her younger siblings are learning and that her peers have mastered. It hurts her feelings and lowers her self-esteem. I would love for her to be able to enjoy something as simple as riding a bike with her friends or us as a family. Her independence is important to her and to her father and me. While we can hold her on a bike or trailer, she is aware that she ‘should’ be able to ride alone and wants to so badly, but her depth perception, lack of balance, inability to pedal and her weak legs make it impossible on any typical bike.”
It was also thrilling to see Riley, age 16 get his new communication device, as he previously received an adaptive bike from Variety… He sums up the day perfectly using his device.
A big shout out to our Intermediate Unit partners, who are a huge component to making our programs a success and getting this life-changing equipment to eligible kids in need – and we couldn’t be more grateful.
Yesterday, we were honored to have Pennsylvania State Representative Frank Dermody join us for our presentation of 22 adaptive bikes, adaptive strollers, and communication devices at the Pittsburgh Mills Mall (hosted by Blackburn’s).
In addition to Rep. Dermody joining us, we were also joined by representatives from the United Steelworkers – District 10, who raised more than $500,000 with USW International President Leo Gerard to sponsor more equipment for kids!
6-year old Elizabeth received her new PINK adaptive bike yesterday, and we were able to capture one very special moment between her and her mom, Tara – both filled with excitement!
During the presentation, Tara told us, “Elizabeth also got a communication device a few months ago, and we have waited 6 years to hear her voice. She told us through the device that her FAVORITE PERSON is her brother… and now with this bike, she’ll get to ride bikes with him.”
We had a TERRIFIC parade around the Mills Mall, which was led by Rep. Dermody on an adaptive bike himself. Watch the parade yourself by clicking here!
4-year old Joshua also received his new communication device, and his mom, Erin told us first-hand how much it means to her in this short video (click here to watch) – you don’t want to miss it!
Just last month, 5-year old Ezra received an adaptive stroller and a communication device through Variety’s programs, and this week, we received a VERY SPECIAL update from his mom, Caitlin, who proclaimed on Facebook,
“Best Mother’s Day ever. For the first time in years, Ezra was able to join our family our at a restaurant to eat with the help of his new adaptive stroller. He sat at the table so nicely and I was so proud! So many little victories I’ll never take for granted!”
Caitlin also told us that Ezra has made significant progress in the past month with his new communication device, “Out of the silence, the roaring lion! Ezra is starting to talk! Years and years of prayers and waiting and prayers and crying and prayers and hoping and prayers and pleading.
My. Ezra. Is. No. Longer. Silent. He’s trying with everything in him to repeat my words and sounds. This is just the beginning. Because of the communication device, you should see the joy on Ezra’s face when he knows he is being understood!”
To get a feel for Ezra, I thought you might enjoy this very quick video to appreciate how speedy Ezra is in using his device —- his voice (click here to watch).
This update not only brings me sincere joy, but it fills me with a greater passion to do even more for kids like Ezra and moms like Caitlin because these MOMENTS MATTER.
Summer, age 5 from Fayette County not only received her new communication device, but she also got a new best friend – a Variety Buddy Bear.
Summer’s mother, Linda sent the below photo and said, “Summer had to have her bear strapped in the car seat like her… and they have been inseparable since.”
Linda also told us her hope for Summer’s new communication device,
“I believe this will help Summer to better communicate her needs.
Summer is a smart little girl, however, the lack of understanding of her speech within the family as well as when out in the community, makes it very hard for her to enjoy herself.
Summer’s Grandfather, for example, cannot make sense of more than 3 to 4 words she says. He cannot stay with her for long periods of time by himself, as he does his other grandchildren, due to the lack of unintelligible speech she has.
Summer also has separation anxiety when I must take her places. She requests that I stay with her if possible to make sure people including kids can understand her enough to where she is comfortable.
Overall, I feel if Summer receives a communication device, her self-confidence will significantly increase. I feel this will also help her with her teachers so that they can treat her the same as her peers.”
Summer is one more child who now has a voice – thanks so much for all that you continue to do.