Dear Variety Friends,
100 KIDS HAVE RECEIVED THEIR NEW VOICES!
In the midst of the pandemic, Variety has provided 100 communication devices (so far) to kids who are nonverbal or have a communication disorder through our special delivery process!
Check out some of the highlights so far, and share in what a communication device means for the kids and their families.
Kozmo, age 5 from Dauphin County:
After delivering Kozmo’s new voice to him, Karen, his Speech Language Pathologist (SLP) from the Capital Area Intermediate Unit told us,
“He had been using 80-85 words on a device at school, so when he saw HIS words on his device, he started jumping up and down with joy, as dad showed it to him for the first time. You can’t see it, but he has a big smile underneath his mask.”
Karen also noted, “What if you couldn’t talk anywhere you went throughout your day and could only point to things? Communication is everything. Every parent wants to communicate with their child.”
After receiving the device, the family went straight home, where Kozmo started to use it right away, saying, “Mom, grandma, and cookie.”
Kozmo’s mom called the device “a God-send in the midst of the pandemic,” as she can move from a mind reader to truly knowing what her child likes. For example, she recently learned that Kozmo likes blueberries through device!
Emmanuel, age 6 from Westmoreland County:
Margaret, Emmanuel’s SLP from the Allegheny Intermediate Unit 3 was thrilled to deliver his new communication device to the family’s home!
Emmanuel’s family later wrote saying, “He loves his device! I am so excited to see how he will grow with it.” Margaret has already received multiple videos of him talking about all of his favorite animals using his new voice!
Levi, age 4 from Dauphin County:
His SLP Kate (from the Capital Area Intermediate Unit) explained how much the device meant to him in school, “Levi picked up using a communication device (with LAMP) in the classroom, and every day, he used the device to ask for a hug! He’s just SO excited to communicate.”
Before he received his device, Levi’s grandmother, Sharia told us, “I can’t wait to see his face light up when he uses it!”
Then, we received another message from Sharia after Levi got his new voice, “He was very excited to connect with something familiar and supportive from his physical school setting. ‘Go get your words’ and ‘Use your voice’ are becoming welcome phrases at home, and our family can’t adequately express in words our gratitude.”
Maci, age 8 from Dauphin County:
Maci also received her communication device during the pandemic. Her mom, Lindsey helped her make this incredible sign as a thanks. If the sign wasn’t enough to make us feel the love, Lindsey and Pam (Maci’s SLP from Upper Dauphin Area School District) wrote this beautiful poem,
To give the gift of a voice
The gift to be heard
The gift to say my choice
The power of a word
Now I don’t have to wait
I have the power to participate
A chance for others to see
The special person that is in me.
It’s exciting to say that a majority of our families receiving devices during the pandemic plan to have virtual therapy sessions and/or trainings with the child’s Speech Language Pathologist (SLP)!
Thank you for sharing in our joy and celebrating these extraordinary kids!
Take good care,
Charles P. LaVallee
Chief Executive Officer
Variety – the Children’s Charity
Dear Variety Friends:
As I take time to reflect, I am truly grateful for believing in our work to change the lives of kids with disabilities. With thanks, I want to send you a series of emails (starting with part 1 today) about the impact we’re having during the pandemic because I thought you would especially appreciate it.
In the midst of this pandemic, I have been inspired and had my life changed by a 17-year old named Corey, who is unstoppable!
This is one of the most incredible stories I have ever shared with you and amazing on many levels. I am sorry it is long… but I guarantee that you will be so grateful that you took in the whole story.
Corey receives therapy services and educational programming at Leg Up Farm in York County, Pa.
He had never ridden an adaptive bike until he rode one at Leg Up Farm.
Ever since, he wanted to have one at home, and he was scheduled to receive an adaptive bike and communication device at Leg Up Farm on April 3rd. Every day, he would ask his Speech Language Pathologist, Lu, “Is my bike there? Is my bike there?”
Corey’s mom, Michelle said that she and her husband (retired army) both love riding bikes, and were excited about the possibility of being able to ride with Corey as a family.
This opportunity to ride together has even more importance because Michelle is battling cancer and currently receiving chemotherapy. She wanted Corey to get the bike while she was healthy enough to ride with him.
April 3, 2020:
The presentation at Leg Up Farm was cancelled because of the pandemic.
Michelle was disappointed about having to wait for the bike, but also that Corey would not receive his communication device because, “Corey is partially verbal – he tries to say everything he reads and tries to communicate, but it is hard to understand him, which is where the device really helps him.”
April 9, 2020:
Michelle approached Lu, who called us, and with Corey’s Occupational Therapist, Nicole, and the leadership of Leg Up Farm, we created a way for Corey and other kids to receive communication devices and adaptive bikes in the middle of the pandemic!
May 9, 2020:
The Saturday before Mother’s Day, Corey received his new communication device thanks to a Special Delivery by Lu to his home.
May 15, 2020:
Corey received his adaptive bike at Leg Up Farm.
Michelle said, “Thanks to the bike and the device, Corey is making connections with neighbor kids he didn’t have before. This has meant the world to him. He just spent the last two hours playing with kids he has never played with before until now, and they live right around us.”
Tuesday, May 19, 2020:
Corey’s SLP Lu sent us an update, “I am just amazed at how he has blossomed in the last couple days with both the bike and the talker. He so desperately wants to have friends and that bike has given him a way to meet them. Instead of just watching them, now he is joining in. Variety didn’t just give him a bike, it opened up a whole new world for him. Variety has truly made a difference in his life!”
Check this out – here’s a video that Corey filmed himself from a Zoom meeting with Lu and his mom.
And to top it all off!
After only having his device for 10 days and his bike for 5 days, Lu said, “It really was wonderful to see him being so independent with his device. He knew exactly what he wanted to tell you and he wanted to do it completely by himself. Now that he’s seeing just how much he can do by himself, he is gonna be unstoppable!”
Does it honestly get much better than this – that in the midst of a pandemic, in partnership with the therapist and his parents, Corey is becoming empowered to live a dramatically different life.
COREY, THE UNSTOPPABLE… I love it!
Take good care,
Charles P. LaVallee
Chief Executive Officer
Variety – the Children’s Charity
Variety was fortunate to be a guest on the Pittsburgh Technology Council’s podcast, Tech Vibe Radio, hosted by PTC’s Audrey Russo and Jonathan Kersting, who help make technology relatable to us all.
The two masterfully highlight what our My Voice® Program is all about and the impact that it is having for kids and families, so please don’t miss listening to Health Care Reinvented: My Voice Program – start listening and get inspired!
Not sure what to expect from the episode? Here’s how PTC describes it:
We couldn’t be more excited to release the next episode of Health Care Reinvented with Allegheny Health Network and Highmark Blue Cross Blue Shield.
This episode overviews the My Voice® Program with Charlie LaVallee of Variety detailing how cutting-edge technology is giving children who cannot speak a voice! It’s hard to imagine a child that is hungry and can’t ask food or a child that is hurting and cannot ask for help.
Listen to how the My Voice Program is putting powerful communications tools into children’s hands and giving them the ability to speak. Charlie has several heart-felt examples of the program making a life-altering difference for the children and their families.
A massive thanks to the Pittsburgh Technology Council (especially Audrey and Jonathan) for supporting and believing in our work, as well as Highmark and the Allegheny Health Network, who helped to make this opportunity possible.
Tree of Life Rabbi Myers was on GMA this past Friday morning, and he made a terrific point when he said that we need “PHYSICAL distance from others at this time but SOCIAL connection.” Such a good point that we need social connected-ness. We are grateful for our connection and all that we have done and are doing for kids with disabilities.
At this challenging time, we wanted to send you a small reminder about the power of a smile.
Issac makes me smile because I know that he has a communication device to not only help him find freedom in communication, but, as his mom describes below, it will help to lessen his own daily frustration.
Issac’s mom, Morgan describes why this device is needed, “Issac’s functional communication has always been a struggle, and it is clearly a source of frustration for him when he tries to communicate but can’t find the words he needs. Since he started speech therapy, Issac has continued to develop a vocabulary of useful words for requesting objects and observations. With this equipment, we can continue to support Issac as his vocabulary grows, and it is our hope this will help decrease frustration.”
Let’s strive to keep our social connection and find every moment to SMILE!
When 4-year old Nik received his communication device, he was BEAUTIFULLY surrounded by his parents, siblings, grandparents, and even his aunt and uncle.
All of whom came to the presentation to celebrate this life-changing day and to show their commitment to helping him every step of the way.
Nik’s mom, Nikol gave us perspective to why she was originally hesitant to try a communication device, and the impact it has since had on her son,
“Watching your child struggle with something is one of the hardest things. Especially when that struggle is with communication.
We as Nikolas’s parents… growing up… we would never think twice about being able to verbally communicate. Something, we feel we took for granted.
We have tried to be so proactive with helping him communicate. When Nik’s speech therapist asked us about utilizing an iPad in class to help Nikolas, we had a concern that it would hurt more so than help Nik. ‘Would he use the iPad and not want to try to speak?’ We were worried, but after support from his teacher and speech therapist, we decided to try it.
To our surprise Nik seemed to come home, almost daily, and it felt like he was able to verbally communicate more that day or week than the last. Janet asked if we were interested in having one at home and without hesitation we happily said ‘YES!’
To have Nik come home and not struggle with verbally communicating his wants as much, whether picking up more words or utilizing the iPad, would be such a blessing.”
After receiving his device, Nikol sent us this 30-second video of him using it to tell her what he wanted:
Thank you for believing in Variety’s work and helping us, help more kids.
3-year old Hazel was all smiles, as she checked out her new communication device (and ate a tangerine). She received the device last Tuesday through Variety’s My Voice® Program, and we are still beaming with joy for her and her entire family.
Her mom, Mary told us,
“Hazel wants to communicate. She tries so hard to tell us what she wants and what she’s thinking, but she runs into the limitation of her ability very quickly. While Hazel communicates with sign language, she only has about five spoken words, and it’s very difficult for her to form words.
A device like this would be life-changing for us, as it would give her another way to speak to us, and it would give her a consistent aid in hearing spoken words to help her build her own vocal abilities.”
This communication device is a tool for kids like Hazel to find their voice, and be able to express their wants, needs, and feelings to those around them. I don’t know about you, but I would love to hear what Hazel has to say now with her device!
On Monday, January 20th, Variety held its first presentation of equipment in Schuylkill County in partnership with Schuylkill Intermediate Unit 29, organized labor, and many other community partners. It was a phenomenal day, as Variety presented 28 adaptive bikes, 3 adaptive strollers, and 32 communications devices!
For 11-year old twins, Madelyn and Kaylynne, it was an especially memorable day, as these sisters both received their very own adaptive bikes!
Madelyn also received a communication device, and the first thing she said to her mother through the device was, “I NEED CAKE,” because she wanted to celebrate the new bikes and her communication device (her new voice)
A few hours later Monday night, I received this photo from her mom (below), and they were celebrating the day with CAKE!
This may seem like a little thing, but it was HUGE for this family.
A tremendous thanks to the IU29 staff who were incredibly motivated and are already planning for our next presentation to keep the momentum going! This is a powerful example of how kids can be identified and provided with life-changing equipment, even in a predominantly rural county like Schuylkill.
Additionally, we received great media coverage to help you share in the joy of the day – see below.
- WNEP-TV: https://wnep.com/2020/01/20/students-with-disabilities-get-life-changing-equipment/
- Republican Herald: Click here to read the full article.
Thanks so much for sharing in the joy of our kids and families.
P.S. I hope that you’ll have some CAKE this week to celebrate with Madelyn and all our kids! The Variety team celebrated right away!
SPRING TOUR BREAKS VARIETY RECORDS TO HELP MORE KIDS!
We’re thrilled to share that Variety’s Life-Changing SPRING TOUR presented a total of 347 pieces of adaptive equipment to children with disabilities over 18 separate stops throughout our service area.
Specifically, we provided 147 adaptive bikes, 128 communication devices, and 72 adaptive strollers worth $526,000 between April 1st through June 18th — and we couldn’t have done it without our incredible partners, supporters, and friends!
Together… we gave MORE SMILES,
MORE CHANCES FOR COMMUNITY,
AND MORE OPPORTUNITIES FOR LIFE!
A historic amount of equipment was presented over the last two and a half months, and we couldn’t have done it without our community of committed helpers. Thank you for sharing in the joy of our work and helping us to make sure that more people know Variety exists, so more kids receive this life-changing equipment.
This is Effie, who received an adaptive bike AND communication device through Variety. Now… she’ll have voice to communicate their thoughts and feelings, as well as a bike to be included and have fun with their friends / family! Read below for more on this extraordinary girl.
4-year old Effie first received her adaptive bike through Variety this past April, and then just this past Tuesday, Effie got her new communication device!
Her mom, Erin described to us during the presentation why this device is SO important, and as a father / grandfather, it was hard to take in.
“Effie got hurt at school. The teacher knew something was wrong. The teacher called me right away and I too knew something was wrong as soon as I saw Effie, but Effie couldn’t tell us what was wrong.
We took her to the doctor – who knew something was wrong and that she was in pain, but Effie couldn’t tell us. It took four days and three doctor visits to figure it out — Effie had a fractured leg. We got her the treatment and she is a happy girl again… With her new communication device, hearing her interact with her family and friends will be terrific and to get to know her will be amazing!”
Erin also gave us an update on how the bike has impacted Effie and her family, “Now, we go to North Park and go on the bike trails where everyone else is riding. Effie does it by herself – just like everybody else. She is riding, and it is AMAZING… thank you for what is a life-changing opportunity for our daughter.”
Not only did we provide Effie with a bike that she’s able to ride, but we provided her with a voice that she can use at all times. It’s our hope to provide this equipment to every eligible child that needs it, and to maximize their possibilities in life!
Recently, we had two incredible presentations with the Allegheny Intermediate Unit 3 on Wednesday, May 22nd and the Appalachia Intermediate Unit 8 on Monday, May 20th to present adaptive bikes, adaptive strollers, and communication devices!
Allegheny Intermediate Unit 3:
Excitingly, we held our first presentation in partnership with AIU3, and their team went all out to make the day extra special with balloons and a welcoming warmth. We presented 13 adaptive bikes, 3 adaptive strollers, and 3 communication devices, as well as fit 4 more kids for bikes.
We were especially grateful to have Allegheny County Executive Rich Fitzgerald and Pennsylvania State Senator Pam Iovino join us for the special day and celebrate our kids.
Sam’s mom, Danielle explained the bike’s importance by saying, “This bike is vital to Sam getting exercise. He is not able to walk unassisted now and even a walker is too difficult, so he mostly gets around in his medical stroller and sits a lot of the day. The bike gives him independence to get around and work his muscles and get some exercise.”
Ella’s mom, Sarah also told us, “As her Mother, it is heartbreaking to have to explain that there are certain limitations that Ella must endure for her own safety and due to her ability.
The positives that would come from Ella having an adaptive bike seem endless – building muscle strength, coordination and flexibility, improved balance, motor skills and body awareness. The list goes on! For our family, this bike is so important because Ella can finally feel what it is like to get out there and go, especially with her siblings! She just wants a chance to keep up with the other kids.”
Appalachia Intermediate Unit 8:
Additionally, we presented 11 adaptive bikes, 11 adaptive strollers, and 7 communication devices, as well as fit 2 more kids for bikes with AIU8!
For Taylor, age 7, a new adaptive bike means A LOT, and her mom, Ashlee explained why, “As Taylor gets older, she is realizing things she is unable to do that her younger siblings are learning and that her peers have mastered. It hurts her feelings and lowers her self-esteem. I would love for her to be able to enjoy something as simple as riding a bike with her friends or us as a family. Her independence is important to her and to her father and me. While we can hold her on a bike or trailer, she is aware that she ‘should’ be able to ride alone and wants to so badly, but her depth perception, lack of balance, inability to pedal and her weak legs make it impossible on any typical bike.”
It was also thrilling to see Riley, age 16 get his new communication device, as he previously received an adaptive bike from Variety… He sums up the day perfectly using his device.
A big shout out to our Intermediate Unit partners, who are a huge component to making our programs a success and getting this life-changing equipment to eligible kids in need – and we couldn’t be more grateful.