Jayla’s smile “says it all”, but her mom, Stephanie explains how their lives were truly changed by Variety’s programs.
Last week, Jayla received her new adaptive stroller, and later that night, her mom, Stephanie shared,
“First, I want to thank you again for all your charity has done for my daughter and our family. It is a huge help for us, especially as a one income family just making ends meet. The help you have given us is beyond measure and words.
Both the communication device and adaptive stroller you provided for my daughter are items we would not be able to afford for her and they are incredibly vital to her growth, development and comfort.
Because she has a rare genetic syndrome that many haven’t heard of and research is lacking in, we have a lot of difficulties navigating care tailored for her.
Jayla’s condition causes her to fall a lot, and her body weakens after just a little bit of activity, even a walk. We haven’t been able to go places that require walking because she needs to be carried and that is no easy feat.
This stroller opens up so many things for her – trips to the mall, walks through Target, family walks in the park, and even walks through our neighborhood, which we had to stop when her disability got worse.
Additionally, the communication device was not only a savior for us when she received it in 2020, but the whole process was fast, especially during a pandemic!
Your programs work, they’re needed, and are so appreciated. Jayla’s smile and happiness says it all, but the teddy bear was also a huge hit!”